Jump to content
Sclero Forums

Recommended Posts

<<Multiple Sclerosis - Progressive disease characterized by demyelination of nerve fibers of the brain and spinal cord. >>

 

Hi, Everyone....Karen...this line caught my eye. Gareth is going to the rheumatologist tomorrow, but this morning he showed me how his leg was shaking. He said "shake in sleep, Mom." I felt his whole leg shake.....like from the inside out. First thing I did was read the side effects for Plaquenil....gotta talk to the doctor tomorrow about this. I have noticed that he is rubbing his eyes alot and holding them shut with his fingers. I am dreading the idea of having to take him off the Plaquenil.....I have seen such an improvement over the past 2 months. I hadn't thought of MS, but I know they have temors and shaking, too.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hi, Margaret. I didn't see tremors and shaking as a side-effect of Plaquenil, but blurred vision is possible. I had vision problems right away when I started taking it a couple of years ago. Gareth's problems with his eyes could be from dryness. You might ask your rheumatologist about Sjögren's Syndrome.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Jefa ,

 

It doesn't say tremors....it says muscle weakness. With Gareth standing and putting his weight on the leg, it was shaking. I will bring up the Sjogren's to the rheumatologist, too. I thought that could be a possibility last week when I noticed him rubbing them. It's a daily occurance these days......not just a gently rub, either, but done with constant deep pressure rubbing to the point where it bothers me and I tell him to stop. I ask him if his eyes hurt or if he's seeing 'lights'. I don't even know what to ask him!!!

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hi Margaret,

 

This might be a different reason than Gareth's leg shaking, but I have a milder form of MD, and when my right leg fatigues, it shakes. Sometimes it will be a vibration in the muscle which you can see and/or feel, but other times my leg looks like it's in an earthquake, and sometimes all it takes to set if off is going down one step onto the porch. Please do ask about the Plaquenil though since I have never taken it and don't know.

 

As for the eyes, I wonder if he's having trouble closing them completely while sleeping and blinking and rubbing them to try to create tears. That's just a guess, but I feel like rubbing my eyes when the floaters or dryness irritate me, and it's hard to tell with G., isn't it? Maybe he will pop out with something to describe it without you knowing the "right" question, and let's hope so!

 

Now here's your refresher course in case you've forgotten...repeat after me:

 

"I AM A GOOD MOM!" And always remember that!

 

Hugs to you and G.,

Elehos

Share this post


Link to post
Share on other sites

Hi again Margaret,

 

If you would like a good laugh, and probably need one by now, today my right leg decided to pull a new number on me. With the MD, the muscles have a mind of their own most of the time, but today I ended up doing a slow-mo pirouette in the bathroom! All of a sudden my hip muscles contracted, pulling my leg out sideways, then my butt and lower back joined in, pulling my leg behind me, bending it at the knee, and slowly turning me around 180 degrees on the ball of my left foot as I grabbed everything in site trying not to tip over. Just when I thought it would let up, it turned me another 180 degrees, leaving me where I had started. My son and hubby got a kick out of that one, too.

 

Oh, oh...don't get worried about G. doing ballet--this isn't sclero related!

 

To a great Mom,

Elehos

Share this post


Link to post
Share on other sites

Oh, my, Elehos....the picture in my mind was funny!!! And your leg can do all that without your consent?!?!?

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hi again!

 

Oh, please do laugh! I've gotten to the point that I speak to my body as if it's another person since it usually has a mind of it's own, and I was in the bathroom asking my leg, "What are you doing??" So far my legs haven't asked me for permission, but I generally have to ask them. Or yell at them to get with the program. It helps keep my sane, and we need all the laughs we can get most days, don't we? Hopefully no one else is doing inadvertant ballet!

 

Hugs and lots of love to all,

Elehos

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×