Margaret

Low Sed Rate

5 posts in this topic

Hi Everyone,

 

Today, Gareth met his new rheumatologist since the other one is on sabatical for 6 months. Before the doctor came in, the nurse took his BP, wt, etc and I commented that he had blood work done 2 weeks ago and that I would like to have a copy of them. She pulled it out and showed it to me and I immediately asked about the sed rate.....it was 40. YESSSSSSS!!! I said!!! She looked at me like I was nuts............"that is sooooooooo high" she said. "Yes, but that is the lowest it has been for the past year." I went on to show her the other results.....80, 93, 72, 49, 62. Looks like the Plaquenil is working!!! The down side....his GFR is down to 76. It was 93 in March, 83 in May. Creatinine is a notch high now....1.3. Tomorrow we have to do the urinalysis and more blood work. She wasn't too concerned about the 'shaking leg' that occured yesterday. I will take him to his primary care physician if that occurs again. Oh, the little things that please me these days!!!

 

Take care, Everyone.

Margaret

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Hi, Everyone ,

 

I forgot to mention the discussion about his 'hard stomach' yesterday with the new rheumatologist......which is still a painful, daily issue. She commented that maybe it has to do with his rib cage and the fact that he has mild restrictive lung disease. She said that maybe his cage can't expand enough whenever his stomach has food in it. Maybe that is the discomfort he is feeling. I suppose if the cartilage/connective tissues surrounding the ribs and muscles become harden then that would restrict the organs on the inside. Any comments?

 

Take care, Everyone.

Margaret

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Hi, Margaret. It seems like a plausible explanation. I have found that even posture can affect the pressure I feel when my stomach is too full. It might be reasonable to offer him smaller more frequent feedings instead of larger meals.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Margaret,

The discomfort Gareth is describing is exactly what happens to me after eating. I feel short of breath after eating and feel the need to lie down. My rheumatologist told me too, that it is a problem with the diaphragm. I have tried Reglan and Zelnorm (when it was on the market) and I really do not think either worked. I am not longer taking meds and just deal with it.

It has gotten better over the last two years, and I do not know why. Maybe I am just so used to it!

You are a great Mom!

Jennifer

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