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Nelly

Vaginal Dryness

33 posts in this topic

Well, here goes... :P

 

I've been have some vaginal dryness for a year now. Honestly, I thought vaginal dryness was just inside the vagina.....didn't realize it meant the outside areas too. It has gotten pretty bad in the last few months. I saw my GYN and she said that the area is extremely irritated from the dryness (yeah, no kidding!). Sex, even with KY, has been totally out of the question. She said she sees this kind of thing with her other sclero patients, that it is common with sclero. Anyone else dealing with this? I did a search for past posts, but couldn't find anything. She suggested using vegetable oil. :blink: She said to rub it all over the area every day, just like you would lotion to other areas of the body. (I'll admit that I almost fell out of my chair when she said this!) She said we can using it during sex too. That it is less irritating than KY, which is synthetic and alcohol based.

 

So is this common and what worked for you?

 

The oil is on my grocery list. :lol:

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Greetings Nelly - I just visited my Gyno and she recommended a product called "Astroglide" (I giggled at that one!). It is over the counter. She said to use before and during ...x. Sclero has most definitely played a part in this problem for me. I can't to hear if anyone has used vegetable oil!! Interesting. Hugs, Ann

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Nelly ,

 

I am sorry......but what a laugh!!! I am picturing all sorts of ideas....how about a can of spray cooking oil by the bed?!?!?

 

Margaret

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Hi, folks. Yes, this is an interesting (and also delicate) topic. Amusing in a way, but also quite important. Here is a link to a Mayo Clinic article about Vaginal Dryness. I recommend reading the whole article, but this link takes you straight into the Vaginal Dryness: Self-Care section. It mentions K-Y and Astroglide which are water-based lubricants and also vaginal moisturizers, Replens and Lubrins. It suggests that you should avoid using douches, hand-lotions, soaps and bubble bath as they may cause vaginal dryness and irritation. I suppose the vegetable oil would work, but it sounds 'greasy' to me. I have an aversion to lotions and creams anyway, but realise the necessity. I know you were joking, Margaret, but I would be cautious about using oil with an aerosol propellant which might in itself be an irritant. (Please note that I have deleted the brand name of the vegetable oil as we do not allow the mention of trade names unless they are included on links through the site).


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Sorry Jefa, I forgot about the brand name thing.

 

Margaret ~ My husband jokingly said the same thing!

 

Thank you for the replies. It's one of those posts you write and delete 10 times before you get the nerve to actually post it. LOL

 

I also wanted to clarify that it's not just during sex that I'm having problems. I can at times feel the irritation/dryness/burning during normal activity during the day or like when I wash or wipe. It has gotten that bad.

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I meant to add that I also have a problem all the time. Better than half of the time I experience a feeling in my vaginal walls that I can only describe as a dull ache.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I use astroglide too, but dont need it much since I'm taking evoxac for my dry eyes and mouth and other areas. Sam


Sam

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Nelly,

I have Sjogren's , so I really have dryness. I take Evoxac, but it doesn't help vaginal dryness for me. I bleed every time I have intercourse and that's using KY. I might look into astroglide. You're right, it's very unpleasant all of the time. I also tend to keep a yeast infection. YUCKY!!!!!!!!!!!!!!!!

Nan

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Hi Nelly,

You are right, this is a touchy subject...but as Jefa said also very serious and common! As far as the veggie oil....I am not convinced. I have read to always use a water based product on the private areas. But for the skin and scleroderma, I have read that an oil based cream is the best.

 

I guess you just have to take a chance and try out different things to see what works for your body. I wonder if any of those otc meds work for that kind of dryness? And as for the yeast infections I preffer to use Acidopholus supplements.


*WestCoast*

 

********

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Hi Margaret,

 

This has been a very slow and painful morning, and your comment about the cooking spray gave me the belly laugh I needed. Thanks! I can just imagine hearing "Fire away!" from behind closed doors.

 

Hello to everyone!

 

Ok, before I become completely off-color here, cocoa butter oil works quite well externally, but I've never used it internally. There are many out there that have mixtures of oils, including petroleum and mineral oils, not to mention fragrance, so if someone wanted to try it, please read the label carefully to make sure you're not allergic to any of the ingredients.

 

Thanks again for the laugh!

Elehos

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Good afternoon all. Funny, but before I came to the sclero website this morning I was looking up vaginal dryness/tearing. The pain during intercourse is unbearable! Glad to read all your suggestions. The most helpful one for me is the idea NOT to wash the area with irritating soaps...good idea. Most everything I found online today related to menopausal body changes, which just so happens to coincide with my age also. I have found some comfort using the damp wipies (like baby wipes) made for adults that contain aloe. I fold one and place it on the painful area, leaving it there held in place with my underoos.

 

I'll keep an eye out for all your comments and suggestions. Thanks,

Laurie :rolleyes:

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Good Evening,

All having trouble with this... have my greatest empathy.

This has been a real problem (for me too)... longer than I care to remember :(

Along with this, my desire is completely gone, too. My hubby is very frustrated, as am I... what to do!?

 

Hugs to you,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi, Laurie, and welcome to the ISN Sclero Forums. I am also glad to see you have joined us and like Sweet, look forward to reading more of your posts. Perhaps you would like to post in our Getting to Know You thread.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Susie, I was going to inquire of your where abouts this week in a post. I haven't seen your screen name on in some time. I hope you have been doing well.

 

I also have the same problems, especially the not interested. In the beginning I thought something was wrong with me when I became disinterested. I just never thought of sex, like it was wiped from my mind. My thryoid doctor said it was because of my thyroid condition. It only got worse. Then the pain came and I truly was no longer interested. Now, my husband has given up. If I don't come on to him or show some interest he just leaves me alone. That indeed makes me happy. Ha! It seems like a vague memory. I figure, if I can live without it then so can he. I guess I am aweful. I will just remember the good old days. Once a month is fine with me. (Grin) Shameful aren't I. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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I am so glad this topic came up. I have been having the same problem and thought that maybe it was menopause. I have been doing some research and think that I have what they call vaginal fissure. They are like tears or cuts in the vaginal area. Does anyone else have this problem? I have an appointment to see the gyn. but I am open to any ideas. It is so great to be able to talk to people who understand.

 

Thanks Lori


Lori Ann

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LoriAnn,

 

I did some google searching on vaginal dryness and vaginal tearing. All the sites I came to suggested lubricants or prescription estrogen creams. Most everything I saw related the problem to vaginal "thinning" related to menopause. Because I have had blood clots and 2 pulmonary embolisms I'm not supposed to take hormones but I am going to ask my gyno about hormone cream. Since it is not an ingested estrogen maybe I can use.

 

One of the things I find difficult in dealing with scleroderma is diagnosis of symptoms...is it sclero related or is it something else? I'm tending toward this one being menopause related (for me anyway). Now I just need to make sure that any possible treatment doesn't compromise or contradict and sclero related meds and/or treatment.

 

Good luck and make this a wonderful day!

 

laurie AKA bioteach

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I am new in this site but have read a lot about the condition you are in...vaginal dryness. You are not the only one who suffers from this irritating, sexually-paralyzing condition. menopausal women, cancer patients, among other conditions also complain about vaginal dryness. on top of the complain list is the pain during sex. You may use lubricants to make it easier. But a more convenient solution is using a vaginal moisturizer. I am sure there are many brands out there. I would personally suggest Replens, you can purchase it over the counter.what makes it different from the other moisturizers is that it is hormone-free, odorless, and colorless. you only use it every 3 days. so no need to apply lubricants before sex. replens should do the trick. ;)

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hi susie! i am glad to be of help...i feel your frustration. especially after having tried a lot of creams, meds, lubricants, etc already. have you tried replens already? let us know if it helped you...others have yet to try this vaginal moisturizer. :P

 

:D

moyashi

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Hi Susie,

 

Let us know if does help your situation. goodluck! I really hope you get a long time solution.

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Sorry! But I too suffer with this but it made me giggle (if you can't laugh at yourself then no one can) I sort of imagined me and the chip pan taking it to bed.

Seriously though it's not at all funny and I get a lot of irritation not to mention itching with this, usually relieved by a good old soak in the bath -- why I don't know?

I could always mention this to my general practitioner but knowing her she'd probably report me to a social worker or throw me out of the surgery -- Have I mentioned her lack of knowledge and sympathy regarding sclero?

 

A delicate subject but one I feel needs to be discussed, looks like it a pretty common problem.

 

Best wishes,

 

Barbs

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I don't think I'm so much dry as just really painful. It almost feels like when my hubby is trying to "get in" that something is blocking him. He says, 'he's in'...(oh my, did I really type that? oh well these people don't REALLY know me LOL) but it feels like sandpaper or like a wall is preventing him. As you can guess, it's made me very hesitant, and like Barb, rather do without than be in pain..who wouldn't?

 

I thought it was menopause too, it probably is but then again maybe sclero? I do this with every little symptom, is it this or that. Of course we have anxiety, this disease is baffling!

 

Anyway, we found a lube that works pretty well, its silicon based and (embarressed again) we found it in a gay men's store in NYC, as we strolled in unawares! It's called 'eros' and made in Germany. The man in the store was very helpful and gave us a free sample as it is very expensive, but maybe there's other silicon based lubes made in the US? Thank goodness for this forum!! It's so amazingly nice to know I am not alone in this disease.

Peace all,

 

Karen

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I saw that this topic was back and wanted to give everyone an update. I went to my gyno and found out that I have a condition called Lichens Sclerosis. It is a skin condition that can cause irritation in the vaginal area. This was such a relief for me because my Dermatologist and rheumatologist could not come up with a cause for my discomfort. I had a biopsy done and the Lichens was confirmed. I used a steroid/cortisone cream 2 times a day for two months, once daily for 1 month and now once or twice a week or more often as needed. I have been able to resume normal intercourse (this made my hubby very happy). I would recommend a discussion with your gyno if you are having any of these symptoms: itching, painful intercourse or vaginal fissures. I was trying to treat it myself and waited 2 years in pain for no reason.

 

I hope that this helps.

 

Lori Ann

 

P.S. I still do use lubrication my preference is Astroglide.


Lori Ann

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