Jump to content
Sclero Forums
Nelly

Vaginal Dryness

Recommended Posts

Well, here goes... :P

 

I've been have some vaginal dryness for a year now. Honestly, I thought vaginal dryness was just inside the vagina.....didn't realize it meant the outside areas too. It has gotten pretty bad in the last few months. I saw my GYN and she said that the area is extremely irritated from the dryness (yeah, no kidding!). Sex, even with KY, has been totally out of the question. She said she sees this kind of thing with her other sclero patients, that it is common with sclero. Anyone else dealing with this? I did a search for past posts, but couldn't find anything. She suggested using vegetable oil. :blink: She said to rub it all over the area every day, just like you would lotion to other areas of the body. (I'll admit that I almost fell out of my chair when she said this!) She said we can using it during sex too. That it is less irritating than KY, which is synthetic and alcohol based.

 

So is this common and what worked for you?

 

The oil is on my grocery list. :lol:

Share this post


Link to post
Share on other sites

Greetings Nelly - I just visited my Gyno and she recommended a product called "Astroglide" (I giggled at that one!). It is over the counter. She said to use before and during ...x. Sclero has most definitely played a part in this problem for me. I can't to hear if anyone has used vegetable oil!! Interesting. Hugs, Ann

Share this post


Link to post
Share on other sites

Nelly ,

 

I am sorry......but what a laugh!!! I am picturing all sorts of ideas....how about a can of spray cooking oil by the bed?!?!?

 

Margaret

Share this post


Link to post
Share on other sites

Hi, folks. Yes, this is an interesting (and also delicate) topic. Amusing in a way, but also quite important. Here is a link to a Mayo Clinic article about Vaginal Dryness. I recommend reading the whole article, but this link takes you straight into the Vaginal Dryness: Self-Care section. It mentions K-Y and Astroglide which are water-based lubricants and also vaginal moisturizers, Replens and Lubrins. It suggests that you should avoid using douches, hand-lotions, soaps and bubble bath as they may cause vaginal dryness and irritation. I suppose the vegetable oil would work, but it sounds 'greasy' to me. I have an aversion to lotions and creams anyway, but realise the necessity. I know you were joking, Margaret, but I would be cautious about using oil with an aerosol propellant which might in itself be an irritant. (Please note that I have deleted the brand name of the vegetable oil as we do not allow the mention of trade names unless they are included on links through the site).


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Sorry Jefa, I forgot about the brand name thing.

 

Margaret ~ My husband jokingly said the same thing!

 

Thank you for the replies. It's one of those posts you write and delete 10 times before you get the nerve to actually post it. LOL

 

I also wanted to clarify that it's not just during sex that I'm having problems. I can at times feel the irritation/dryness/burning during normal activity during the day or like when I wash or wipe. It has gotten that bad.

Share this post


Link to post
Share on other sites

I use astroglide too, but dont need it much since I'm taking evoxac for my dry eyes and mouth and other areas. Sam


Sam

Share this post


Link to post
Share on other sites

Nelly,

I have Sjogren's , so I really have dryness. I take Evoxac, but it doesn't help vaginal dryness for me. I bleed every time I have intercourse and that's using KY. I might look into astroglide. You're right, it's very unpleasant all of the time. I also tend to keep a yeast infection. YUCKY!!!!!!!!!!!!!!!!

Nan

Share this post


Link to post
Share on other sites

Hi Nelly,

You are right, this is a touchy subject...but as Jefa said also very serious and common! As far as the veggie oil....I am not convinced. I have read to always use a water based product on the private areas. But for the skin and scleroderma, I have read that an oil based cream is the best.

 

I guess you just have to take a chance and try out different things to see what works for your body. I wonder if any of those otc meds work for that kind of dryness? And as for the yeast infections I preffer to use Acidopholus supplements.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Hi Margaret,

 

This has been a very slow and painful morning, and your comment about the cooking spray gave me the belly laugh I needed. Thanks! I can just imagine hearing "Fire away!" from behind closed doors.

 

Hello to everyone!

 

Ok, before I become completely off-color here, cocoa butter oil works quite well externally, but I've never used it internally. There are many out there that have mixtures of oils, including petroleum and mineral oils, not to mention fragrance, so if someone wanted to try it, please read the label carefully to make sure you're not allergic to any of the ingredients.

 

Thanks again for the laugh!

Elehos

Share this post


Link to post
Share on other sites

Good afternoon all. Funny, but before I came to the sclero website this morning I was looking up vaginal dryness/tearing. The pain during intercourse is unbearable! Glad to read all your suggestions. The most helpful one for me is the idea NOT to wash the area with irritating soaps...good idea. Most everything I found online today related to menopausal body changes, which just so happens to coincide with my age also. I have found some comfort using the damp wipies (like baby wipes) made for adults that contain aloe. I fold one and place it on the painful area, leaving it there held in place with my underoos.

 

I'll keep an eye out for all your comments and suggestions. Thanks,

Laurie :rolleyes:

Share this post


Link to post
Share on other sites

Good Evening,

All having trouble with this... have my greatest empathy.

This has been a real problem (for me too)... longer than I care to remember :(

Along with this, my desire is completely gone, too. My hubby is very frustrated, as am I... what to do!?

 

Hugs to you,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, Laurie, and welcome to the ISN Sclero Forums. I am also glad to see you have joined us and like Sweet, look forward to reading more of your posts. Perhaps you would like to post in our Getting to Know You thread.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Susie, I was going to inquire of your where abouts this week in a post. I haven't seen your screen name on in some time. I hope you have been doing well.

 

I also have the same problems, especially the not interested. In the beginning I thought something was wrong with me when I became disinterested. I just never thought of sex, like it was wiped from my mind. My thryoid doctor said it was because of my thyroid condition. It only got worse. Then the pain came and I truly was no longer interested. Now, my husband has given up. If I don't come on to him or show some interest he just leaves me alone. That indeed makes me happy. Ha! It seems like a vague memory. I figure, if I can live without it then so can he. I guess I am aweful. I will just remember the good old days. Once a month is fine with me. (Grin) Shameful aren't I. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×