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Vaginal Dryness

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I am so glad this topic came up. I have been having the same problem and thought that maybe it was menopause. I have been doing some research and think that I have what they call vaginal fissure. They are like tears or cuts in the vaginal area. Does anyone else have this problem? I have an appointment to see the gyn. but I am open to any ideas. It is so great to be able to talk to people who understand.

 

Thanks Lori


Lori Ann

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LoriAnn,

 

I did some google searching on vaginal dryness and vaginal tearing. All the sites I came to suggested lubricants or prescription estrogen creams. Most everything I saw related the problem to vaginal "thinning" related to menopause. Because I have had blood clots and 2 pulmonary embolisms I'm not supposed to take hormones but I am going to ask my gyno about hormone cream. Since it is not an ingested estrogen maybe I can use.

 

One of the things I find difficult in dealing with scleroderma is diagnosis of symptoms...is it sclero related or is it something else? I'm tending toward this one being menopause related (for me anyway). Now I just need to make sure that any possible treatment doesn't compromise or contradict and sclero related meds and/or treatment.

 

Good luck and make this a wonderful day!

 

laurie AKA bioteach

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I am new in this site but have read a lot about the condition you are in...vaginal dryness. You are not the only one who suffers from this irritating, sexually-paralyzing condition. menopausal women, cancer patients, among other conditions also complain about vaginal dryness. on top of the complain list is the pain during sex. You may use lubricants to make it easier. But a more convenient solution is using a vaginal moisturizer. I am sure there are many brands out there. I would personally suggest Replens, you can purchase it over the counter.what makes it different from the other moisturizers is that it is hormone-free, odorless, and colorless. you only use it every 3 days. so no need to apply lubricants before sex. replens should do the trick. ;)

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hi susie! i am glad to be of help...i feel your frustration. especially after having tried a lot of creams, meds, lubricants, etc already. have you tried replens already? let us know if it helped you...others have yet to try this vaginal moisturizer. :P

 

:D

moyashi

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Sorry! But I too suffer with this but it made me giggle (if you can't laugh at yourself then no one can) I sort of imagined me and the chip pan taking it to bed.

Seriously though it's not at all funny and I get a lot of irritation not to mention itching with this, usually relieved by a good old soak in the bath -- why I don't know?

I could always mention this to my general practitioner but knowing her she'd probably report me to a social worker or throw me out of the surgery -- Have I mentioned her lack of knowledge and sympathy regarding sclero?

 

A delicate subject but one I feel needs to be discussed, looks like it a pretty common problem.

 

Best wishes,

 

Barbs

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I don't think I'm so much dry as just really painful. It almost feels like when my hubby is trying to "get in" that something is blocking him. He says, 'he's in'...(oh my, did I really type that? oh well these people don't REALLY know me LOL) but it feels like sandpaper or like a wall is preventing him. As you can guess, it's made me very hesitant, and like Barb, rather do without than be in pain..who wouldn't?

 

I thought it was menopause too, it probably is but then again maybe sclero? I do this with every little symptom, is it this or that. Of course we have anxiety, this disease is baffling!

 

Anyway, we found a lube that works pretty well, its silicon based and (embarressed again) we found it in a gay men's store in NYC, as we strolled in unawares! It's called 'eros' and made in Germany. The man in the store was very helpful and gave us a free sample as it is very expensive, but maybe there's other silicon based lubes made in the US? Thank goodness for this forum!! It's so amazingly nice to know I am not alone in this disease.

Peace all,

 

Karen

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I saw that this topic was back and wanted to give everyone an update. I went to my gyno and found out that I have a condition called Lichens Sclerosis. It is a skin condition that can cause irritation in the vaginal area. This was such a relief for me because my Dermatologist and rheumatologist could not come up with a cause for my discomfort. I had a biopsy done and the Lichens was confirmed. I used a steroid/cortisone cream 2 times a day for two months, once daily for 1 month and now once or twice a week or more often as needed. I have been able to resume normal intercourse (this made my hubby very happy). I would recommend a discussion with your gyno if you are having any of these symptoms: itching, painful intercourse or vaginal fissures. I was trying to treat it myself and waited 2 years in pain for no reason.

 

I hope that this helps.

 

Lori Ann

 

P.S. I still do use lubrication my preference is Astroglide.


Lori Ann

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Hi KarenL,

 

As I have been suggesting to Susie and the rest of the women here, try using replens. You use lubes right before sex which is sometimes, can change the mood, and maybe a little less appealing to your partner/hubby. Replens comes in two variants but I suggest the vaginal moisturizer since it is more convenient to use. You use it every 3 days and no need to apply right before sex. Good luck!!!

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Hi everyone and thanks so much for all your posts!! I, too, have been suffering with this for 2 plus years. I am still not officially diagnosed with scleroderma but am in the process; currently diagnosed with UCTD (undifferentiated connective tissue disease) with sicca syndrome. Have been going to UCSF for 9 months and they have been incredibly slow at the workup. Have an appointment in February 2012. I am going to copy this post and bring it to my doctors and insist on further help for the dryness.

 

I see that no one has posted here since 2008 - I hope you guys are still out there!! Good luck to all and thanks again for posting.

 

Cindy

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Hello Cindy

 

Welcome to the forums! don't have this particular issue but as you have seen from the replies many do and it ain't nice. I hope that you get some relief from your symptoms soon and that your appointment goes well, maybe keep us informed?

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Cindy,

 

Welcome to these forums!

 

Like some of our other members I have also experienced this problem so I can sympathise with you, but would almost definately say in my case that it's age related (sadly! ;) ) and not neccessarily to do with having Scleroderma.

 

Meanwhile I've included a link to UCTD to give you some more information and please do post again and let us know how you get on with your appointment in February.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I have just started using some steroid cream due to problems of dryness, sore and itching which my general practitioner gave me. It does sound very much like the cream Lori Ann has talked about so I'm hoping its going to help. I do think is a combination of many things for me which has caused these problems for me. I do have Sicca/Sjogrens and have been through a very early menopause etc.

 

I have to admit it took me an age to pluck up the courage to mention it to my general practitioner.

 

Buttons

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