• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
PrincessB

Astis Trial

9 posts in this topic

Hi everyone,

 

Just wanted to share how happy I am that I've been randomised into the stem cell transplant arm of the ASTIS trial. I would have been happy to be starting a treatment either way, but I really wanted that one. I think I must be the cheeriest patient my doctor has ever had, my cry of "YIPPEE!" when he told me was greeted with a bemused "Well, yes, I was happy too".

 

I have an appointment with the haemotologist whose department will be carrying out the treatment on 10th August and will be starting before 4th September. Will let you know how things go...


Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

Share this post


Link to post
Share on other sites

Congratulations, Princess!!! Results seem to be very positive for stem cell treatment.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

CONGRATS!!!!

 

I'll be sending good vibes for a great outcome= tj

Share this post


Link to post
Share on other sites

PrincessB , keep us up to date on the different procedings. How you felt before and after. About how long it takes to feel almost normal. We will be here cheering you on and hopefully someone in your family will give us the scoop on how well you are doing. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

PrincessB Thats wonderful news!!I am so happy that you got in. As the others have asked, do please keep us up to date on this.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now