peanut

Transplant

5 posts in this topic

Hubby and I were talking about Scleroderma and he asked me a good question I thought I'd pose to the group. I know it's not the happiest thought, nor one I'm necessarily considering - just one of curiosity:

Can someone with Scleroderma and ILD get a lung transplant? Or would the Scleroderma produce scar tissue in the new lungs like it did in the old lungs?

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Peanut,

Excellent question, but I don't know the answer. I am sure someone on the site will know.

Have a good day!

Nan

Share this post


Link to post
Share on other sites

Hi there Peanut,
That is an interesting question...I myself have never heard of someone getting a lung transplant due to Sclero related ILD, but that doesn't mean that it isn't possible.

I would guess that there are the same risks for scleroderma patients as there are in a other patients There is still the risk for GVHD where the donor's
cells see your body as foreign and your body attacks them.

From what I have read, lung transplants are an option for scleroderma patients suffering from ILD.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Peanut,
We do have a small section on lung transplants in one of our pulmonary pages. Apparently it's being done and is possible, but as Erin pointed out - it's risky due to GVHD.

Hopefully your meds will help to stabilize if not improve you lungs so a transplant never even becomes a consideration. I'll keep my fingers crossed for you.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Peanut,

One of my friends had an appt. today to discuss a transplant, at a clinic at UCLA. He has systemic sclerosis with severe ILD. I will let you know what he finds out.

Jen

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now