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Migraines

12 posts in this topic

I have always suffered from migraines, but have not had one for six months and prior to that around 7 years until last week. I have had 4 migraines in one week and am beside myself.

 

I went to see my doctor and asked for a CAT scan to rule out a tumour or stroke.

My sister had a stroke at age 40 and my aunty died of a brain aneyrism at 40 in her sleep. I also had a uncle that had a brain tumour.

 

My doctor refused to give me a referral to have a scan as I had one 6 months ago and it was normal. She said that nothing would change in the last 6 months.

 

Does anyone know if Scleroderma plays a part in migraines?

 

Thanks

Celia

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Very interesting question. My father, who had CREST scleroderma, same as me, suffered from classical migraines (photophobia, aching hair, scintilating scotoma).

 

According to the literature, migraine is a vascular headache - so, considering the vascular issues with scleroderma, it would not be surprising.

 

I do not have migraine, but I have mild epilepsy. I read in a book that there is a very high concurrence between epilepsy and raynauds - so a connection seems likely.

 

Craig

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Hi Celia,

I do think that there is some connection between autoimmune disease and migraines. Many people suffer from Lupus headaches. I get migraines regularly. I still have yet to find a reason for all of them.

 

Have you identified any triggers which might have started your migraines this week? (sun exposure, red wine, stress, menstration...ect)


*WestCoast*

 

********

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Hi Celia, I have had migraines since I was 14 years old. I just had a really bad one last Sunday and Monday. I had steroids injected into my neck and shoulder area last Wednesday and I have been suffering ever since. My Neouro. Doc. has me on a daily med called Lyrica, which is excellent for migraine sufferers. I also take Zomig as needed. I can totally relate to you. I drink a well known non-carbonated sport drink in lime flavor, which does help some. I read somewhere that it is good for people who suffer from Migraines. I tell you what, nothing was helping me last Monday it was awfull. Make sure you have lots of ice packs on hand. I do believe that these migraines are related to these Autoimmune deseases.

 

Jackie S.

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I also suffered from migraines for years. Then I went through change of life and then had a hysterectomy. No more headaches. Right after my hysterectomy I was diagnosed with scleroderma. I exchanged one problem for a greater problem. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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My first migrane came to me in 1990. Until then I had never experienced any pain like it though I had had frequent "regular" headaches all my life. I Had a friend take me to ER where they kept asking me if I hit my head and they couldn't take "NO!" for an answer. They shot me in the rear with pain medication and sent me home.

 

After that I had maybe 2-3 /year until I had the mother of all migranes after getting off the plane from my honeymoon. I could not open my eyes and could not walk without assistance - I swear I was even in and out of consciousness from my dad's house to the ER because I only remember bits and pieces. When I got home I was down for 4 days.

 

After my "probable" lupus diagnosis I assumed my headaches were"lupus headaches" They always started at the back of my neck and creeped over the top of my head.

 

I always used (800mg ibuprofen and) heat because I figured try to relax it away which never did work. One day I decided to try ice and wow it did the trick! Now at the first sign of pain I pop the ibuprofen and relax with an ice pack on the back of my neck and I'm usually good to go in about 1/2 hour. Have not had a full blown migrane since.

 

What do you take for them? Have you tried ice?

 

I agree that autoimmune disease must play a part in migranes. Mine were not "typical" migranes in that there was no food or beverage trigger, I never saw any lights and I was not particularly light sensitive. It just felt like my skull was ready to explode and I think I would have felt better if it had. I wanted to die!

 

Hope you don't have another one! Take Care ced.

 

Love,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi everyone,

Thanks for answering my post.

I am very sensitive to light, I try and wear dark sunglasses if I go outside to the line and also pull down the blinds inside if it is a sunny day.

 

Thanks

Celia

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I have had migranes and linearic scleroderma for about ten years now. I've never eaven tought about them having a connection or something.. My migranes are usually triggered by something like too bright spring sun, smells, or if I haven't eat for a while.. Dunno then..

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Hi, I have suffered from migraines with aura since I was in kindergarten although I didn't know what to call them till I was in my 20's. It was difficult to find a medication to treat my high blood pressure without affecting the migraines or the raynauds. The medication I take is atenolol. My migraines have been less frequent since I started it but... my raynauds has been worse. I believe one causes dialation of the blood vessels and the other constriction, but if I'm wrong, someone please correct me. Either way I have twitchy blood vessels so I believe there is a connnection.

Hugs, Piper

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Hi everyone, thought I would actually post for a change rather than just browsing. From what I've read, there is definitely a link between migraine and lupus/scleroderma. I have had migraine for about twenty years, but in fact since starting on calcium channel blocker for raynauds have had far fewer- not much effect on the raynauds though!

lizzie

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