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LisaBulman

Raynaud's Sufferers

21 posts in this topic

Hi Everyone,

 

How many of you have a disability plate or card for your car? The cold weather is here and it can make it a lot easier for you to handle. I went years suffering, parking in the lot of the stores and walking to my car, dragging my two kids, freezing, only to jump into a freezing car.

 

Two years ago, I decided to go onto my state's website to see if I was eligible for a disability card. I figured with my severe raynaud's and the beginnings of my lung disease it was worth a shot. My dr filled out the form and I was approved, just like that! I received it in the mail just a few weeks later.

 

Now I am able to park in the handicap spot so before I leave the store I start my car from inside. (I have an automatic starter which is fabulous!) I wait a few minutes and then I head out to my car. By the time I get there it is toasty so I don't have to freeze!

 

It is worth a shot!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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I have a handicapped tag for my car. When I first got sick I used it a lot. Now I use it when I need to, like when I am exhausted from dialysis, or if there is no other parking available. I feel guilty sometimes, because there doesn't look like anything is wrong with me.


ISN Artist

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I have one, my doctor just filled out a script for it and I took it to the DMV. I was on oxygen at the time. I have Artery disease in my legs which makes it hard to walk long distances, also severe Raynauds and SOB. I know what you mean with the car starter, it was my Holiday present from hubby last year. I love it.

 

Brenda

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What a great idea Lisa! - both with the disability tag and the automatic car starter. Definitely something I would consider if I lived in a colder climate. We have so few brutally cold days here in the SW that I stay inside on those days and send the hubby on the errands. :) I can certainly see how it's a life saver living the the northeast and always being on the run like you are.

 

BTW - I love the girls costumes!

 

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Lisa,

This was great information to post :) . Like others of you, I try not to use handicapped parking unless I absolutely have to. I also live in a colder climate and you are so right... It can be rough when the raynauds affects us. Cold weather is not my friend, nor my husband's, so we appreciate having the placard on such days. (BTW, my husband's dr is the one who pressed us to get the placard, but my rheumatologist wanted me to have one years ago.

Hugs to all of you,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Several years ago when I was leaving from an appointment with my neurologist (UCLA) she followed me out with the paperwork (signed) for a handicap plaquard. She said with my raynaud's, fibro and scleroderma I should always have it with me. I was and am very greatful.

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Wow! I have secretly wonered about this! I am SO GLAD you brought it up! I am going to call my rheumatologist on Monday & ask him. I've wanted to look into it but was embarrassed but seriously....it is an aweful & sometimes tearful experience walking through a parking lot when it is that horrifically cold! I am about in tears to hear that people have been approved for one due to Raynauds. I have Raynauds & Fibro.

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Thankyou so much for posting this. I called my rheumatologist & he filled out the application today & is sending it to me tomorrow! I am SO relieved, having one of those takes a huge load off my shoulders for school....I have been so worried about walking so much outside this winter! I'm about in tears over not having to do this!

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I looked up the form online for the disability placard, and I'm not sure Raynaud's applies in Ohio. Some of the things included on the form are not being able to walk 200 ft without stopping to rest, not being able to walk without assistance (i.e., using a brace or cane, etc.), not being able to walk due to arthritis or a neurological or orthopedic condition, or having a lung or cardiac limitation.

 

I guess the only one close would be the arthritis, huh? I don't want to call my doctor to write a script if the DMV isn't going to accept it. The winters in Ohio are brutal even for a healthy person. I have to wear gloves and my office heater when it's 60 degrees outside. This will be my first winter with full blown Scleroderma/Raynaud's. I don't know how it'll be when it's 2 degrees outside.

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Tara,

 

I would encourage you to go ahead and request it from your doctor. He/she will know both if you qualify and your doctor understands your condition. You have nothing to lose.

 

It seems like I read something similar on my MO application and I wasn't sure if I qualified, but my doctor immediately gave me a signed application. I think DMV gives you the disability placard if your doctor thinks you need it.

 

Best wishes,

 

Dee

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I have a disability placard. I love it. I have it in the lungs so I really appreciate not having to park far away. I use mine all the time...I feel it's a fair trade.

Jen

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Dee's right...in Colorado, you just need to the submit form to the Dept of Motor Vehicles, signed by the DR and you are issued a placard. It's not investigated at all by the clerks. I used to work in the office that issued the placards. They are free too! I think Raynauds should be reason enough to have one. As if being in the grocery store is not traumatic enough, right?

J

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Tara,

 

I live in MI & I think mine says pretty much the same as yours. My Dr. filled it out & I got it in the mail today, I just have to take in the application tomorrow. SO, I say call your rheumatologist & get one ordered. It's your hands & fingers we're talkin' 'bout here! I want to preserve mine (& everything else affected by Raynauds) as much as possible.

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I have had one for two years now. It is nice to have when am having problems walking or if it is really cold out. I do recommend to get one. My parents don't have one and I told them they should get one. They bothe had triple by passes and some other health issues. All they have to do is have a Doctor write out a script for it take it to the BMV and get one. It is that easy. Sam


Sam

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I do not think you need to have a car or license to be able to have the placard. It is not the actual license plate, it's just a placard that hangs from the mirror...and it can be used in any car that the disabled person is in.

Good luck! Some doctors actually have the DVM forms at their office so that it omits a step for the patient, especially orthopedic doctors.

Jennifer

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Hi Lisa,

 

I am pretty sure you can get a tag even if you don't drive or have a license. I know my mother had one that she used whenever she transported my grandmother who was in a wheelchair.

 

Warm wishes,

Heidi

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I have also 'secretly' wondered about a placard. Not only do I have Raynaud's but my body aches like the flu when its cold outside and for me it doesn't have to be 20 degrees. I'm a hurtin' unit in 50 degree weather. (maybe I oughta move to Florida? - not. I love my little town in the Northwest)

 

Anyway, I've been too.....what's the word I'm looking for? Proud? Shy? Embarrassed? to look into getting one. As uncomfortable as I get, I don't feel like I should go that route - yet, even though it sure would be nice.

 

Slightly off the subject.....my local, large chain grocery store has recently designated 2 parking spots close to the door for - get this: people who are just running in for a coffee at the big chain coffee shop inside!

 

I thought this kind of ....stupid, even insulting to people who must use handicap parking. Why on earth would someone 'running' in for coffee NEED a close parking space?! What abut the 9 month pregnant woman or the woman with 4 kids and a cart and a half of groceries? I may write them a complaint yet.

 

Jennifer - yes! The grocery store IS traumatic. I hate having to go grocery shopping, more now than ever because I HAVE to wear my gloves now when I shop and I get strange looks. I even got a comment, "You're THAT cold?!" (Some people are so rude.) So I told her all about Raynaud's and she APOLOGIZED for her comment.

 

 

Stay warm,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Sweet,

If you go to your state's website and then go to the motor vehicle section, not sure what they call it there, it could be the RMV or the DMV. If will be in there somewhere.

 

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hey guys, just putting my two cents in.... I was hesitant about getting a placard for my car, I didn't think I was THAT bad, plus as some of you have said, I look pretty healthy. But my doctor pointed out to me that even a SHORT amount of time in the cold can cause irreversable tissue damage. when I first started seeing him, I met a woman in his waiting room who had lost several of her fingers to this horrible disease, and you know, I will wear my gloves in the grocery store, use my placard, and weather the looks and comments cause I really like my fingers! Here in the northeast a sudden chilly wind can turn me purple, so I've learned not to take chances. I even wear gloves and take a blanket to the movies in the summer cause they keep it so cold in there.... we do what we hafta do. Keep warm! Love, Mary in Philly


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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