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Kamlesh

Dry Mouth

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All,

 

Any suggestion to reduce effects of dry mouth? I have been having issue of dry mouth for fairly long time. I had been taking several medications for Scleroderma, diabetes, Raynaud's, depression, sleep disorder, cholesterol, Allergy, GERD, and high BP – total 21 medications.

 

My rheumatologist suggested cutting it down and I reduced from 21 to 15. I simply stopped some of the medications for Raynaud's, high BP (my BP is fairly under control), Allergy, and few others which are not critical.

 

I understand one of the side effect of Cellcept is dry mouth, and I reduced dose from 3000mg to 2000mg, but I can’t stop it.

 

Any suggestions for dry mouth?

Any ideas about balancing medications vs. side effects?

 

Thanks


Kind regards,

 

Kamlesh

 

 

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I use a toothpaste & mouthwash that I would be glad to share the name with you if you want to send me a PM. I didn't notice a big difference at first, but now I can tell it has really helped. I also keep water with me all the time, especially at night by the bed. I've also read that sucking on sugarless candies will help. I haven't tried that though. I'm not big on candy.

 

I suspect my problem is Sjogrens, not medication side effects. Have you looked into that?

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Kamlesh,

I take Cellcept (3000 mg) but haven't noticed anymore dry mouth than normal. My dry mouth usually results from eating salty foods so I've really cut back on salt and that has helped a lot. I also chew gum which helps to produce saliva and has the added effect of helping with digestion because of the increase in saliva production.

 

Hope you find something that works for you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hey Kamlesh,

I use special name brand mouthwash and tooth paste, sugar free gum and Salagen. I also drink lots of water.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi, Kamlesh. Sorry to hear about your problems with dry mouth. When I saw that you had been taking 21 drugs and cut down to 15, I had a look at some of the ones still in the list in your signature. I am curious about the cholchicine. What was that prescribed for? I presume that all of these drugs were prescribed by different doctors for your various conditions. It might be a good idea to put them all together on one chart by condition, listed in the order of overall importance to your health. You could then review the whole list with your primary care physician. It may well be that interaction between one or more of your drugs may be a contributing factor to some of the conditions (i.e. sleep disorder).


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Kamlesh,

 

My doctor also suspects a crossover with Sjorgen's, but I keep testing negative for it...except I have all the sympotoms...go figure.

 

I have found relief from a toothpaste, mouthwash and gum products . I'd be happy to give you the name of it if you send me P.M. It's OTC and not too expensive. Also try cutting out all vasoconstrictorsi.e., caffeine, nicotine, etc.

 

Good luck,

Laurie

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Hi Carrie,

 

Colchicine is used for gout. I believe it helps joints affected by Scleroderma. I have been keeping up-to-date list of medications. This list is frequently reviewed by my rheumatologist as well as my primary physician. After stopping Effexor my dry mouth is better. I have been having issues with dry mouth as well as mouth thrush. Even slightly spice food burns my mouth.


Kind regards,

 

Kamlesh

 

 

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My dentist suggested artificial siliva. It comes in a spray bottle that I keep with me and I use it as often as I want. It isn't a cure, but it helps the worst of it for me. I keep it by the bed, for when I wake up dry, too. Lyn

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