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beverly

What Is Plaquenil?

12 posts in this topic

I was reading about the fatigue problem and quite a few people have suggested it. What is it and does it really help?

 

Thanks

Beverly :closedeyes:

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Plaquenil - (Hydroxychloroquine sulfate) is an older drug that has been used for years to treat malaria. It is also considered an anti-inflammatory drug and is used to treat Rheumatoid Arthritis and Lupus. Its main side effects are visual changes and you are supposed to have an eye exam every 6 mos- 1 year.

I took it several times for 6 months at a time and I never noticed any difference in my fatigue level so I stopped taking it. Since it doesn't seem to have any major side effects it is probably worth trying if your Doctor thinks it might help.

Hope this helps......

Laurie

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Beverly,

I found this on the ISN Scleroderma medications page.

 

It's the Medline Plus information on Plaquenil (Hydroxychloroquine). Plaquenil is often used in the treatment of lupus, scleroderma and Sjogren's.

It restates the information that Laurie provided and a little more.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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It reduces lupus symptoms like joint pain, fatigue, muscle pain, skin rashes, etc. :)

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Plaquenil helped with some of my fatigue, and the terrible body aches I was experiencing. other than that the descriptions above really explain it well.


*WestCoast*

 

********

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Thank you everyone for educating me there are so many medicines and very little time.

 

Beverly

 

PS how do you get your picture on your messages?

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Plaquenil is used for autoimmune disease in place of prednisone. I was on it along with prednisone so I could lower my dose of prednisone. It didn't seem to be doing anything for me so I took myself off. I feel that it is safer than prednisone.

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Judy,

 

How long did you try the Plaquenil for? It generally takes between 4 and 6 months before you are supposed to notice any difference and even then it is a very gradual lessening of symptoms (for me extreme fatigue and pain).

 

Warm wishes,

Heidi

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Beverly,

 

 

 

Plaquenil turned my life around! The tremendous fatigue and pain have been greatly helped. But it does take months and takes effect gradually. I've taken it over two years. My sister has taken plaquenil for her lupus for years.

 

 

 

I too feel it is safer than the prednisone. Prednisone had a quick and dramatic benefit. I felt a great surge in energy and shopped for hours (for the first time in a year). But my rheumatologist told me prednisons was a "double-edged sword." You don't want to be on prednisone long, at least in larger doses. I was gradually weaned off it.

 

 

 

I hope you find the meds you need.

 

 

 

Warm hugs,

 

 

 

Dee

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DOES PLAQUENIL HAVE HEAVY SIDE EFFECTS AND WOULD IT COST MORE THAN PREDNISONE? I'D LIKE TO TRY SOMETHING NEW SINCE I'VE BEEN ON IT FOR 8 YEARS NOW. I'VE NEVER HEARD OF PLAQUENIL, I'M GLAD I READ THIS POSTING ;)

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HI R'egene,

 

Different people react differently to different drugs. I never experienced any side effects from the Plaquenil, but I had a friend who felt like she had the flu when she took it. The most serious side effect that can occur is damage to one's eyes. But I have heard that that is a very rare side effect. You just have to make sure you have your eyes examined at least once a year once you start taking it.

 

The link Janey provided in a message above also lists side effects.

 

I don't know about the cost. I pay $10.00 a month as my co-pay for it and I think that is about what I paid for the prednisone when I took that. I also get the generic (my rheumatologist said I couldn't get the non-generic Plaquenil even if I asked for it).

 

I hope this helps.

 

Warm wishes,

Heidi

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