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Sheryl

Neurologist

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I finally got in to see a neurologist to read me the information and confirm what I already knew. I do have sleep apnea and restless leg syndrome (RLS). I guess the doctor will send my report to my insurance company who already ok'ed a machine months ago. Then the report goes on to the place that I have to purchase my machine through. They will call me next week and either bring it to me or I will have to go pick it up. So, I am still waiting. This is one of the biggest pains I've have come across between doctors and insurance. The Neurologist was very concerned about the RLS that does bother me much at all. He thinks the B/Pap machine will help also help the restless legs that may be what is waking me up also. If not he wants to put me on yet another pill. There is a mouth piece that can be made instead of the pill routine. I already wear one type for TMJ. So, I will report back, when I get the machine and after I have tried it for awhile. I don't really wish to add another pill to my regimen. I hope I get some real results after all this time. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

I have a friend that uses the machine and thinks it's great. I hope it works well for you too. I don't know how you stand RLS!!!!!!!!!!! I get it when I am anemic and it drives me nuts. I don't sleep at all. Take care of yourself!

Nan

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Hi Sheryl,

Boy one more pill huh?? I hope that the other option works for you instead. Please let us know how the CPap machine works out for you. It is so frustrating that one machine, (that can really help you out), puts the insurance company in such a tizzy! Anyhow, sounds like you finaly got it worked out. :)

 

What tests did the neuro put you through to find your sleep apnea and RLS?


*WestCoast*

 

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I hope I will like and use the machine. I have heard so many people who have them and don't use them. Maybe, by making me wait so long they figure I will be sure to use it. I am sure I will once I get use to it. Nan, I had blood drawn to see if I am anemic. I may have to take an iron supplement of some sort. Hopefully, not. Then that will just start other problems. Mayhap anemia is the problem when the RLS is worse. I mask the symtoms by taking Xanax at night the neurologist said. But, that is what is partly keeping me awake. So between the mouth gaurd and the machine I hope to feel some relief. If not I now know that there are other options. I get figgity just thinking about it. Ha Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Sheryl,

I would be careful with the Xanax...definately take the doctors advice but...I have heard that the sleep that you get while on the Xanax isnt the REM sleep that you get naturaly or with some other medications. Did he say that you need to take it every night or just as needed?


*WestCoast*

 

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