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Louxx

Last Night

7 posts in this topic

I went out to a night club last night, a lot of dancing was done at the start of the night so my legs got real sore.

I got so annoyed cos everyone kept pestering me (the people who don't know me real well, and don't know that I have scleroderma and tired joints). they kept trying to get me to dance and said I was no fun and stuff.

 

The only thing is, i never know what to say. When I say "my legs are sore" they just look at me as if I have 2 heads and don't get me.

 

I know a lot of people on this are mostly older than me, so I'm not sure if it happens to anyone. but if it does, let me know what I should say to them.

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Louise,

Tell them you are going to sit a few out, because you are stealing the show with all your moves... :)

 

I am sorry you are young and going through these struggles. Some times it just doesn't seem fair.

 

Take Care Sweetie,

Jen

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Hi Louise,

 

I love Jen's answer! Another idea might be to space your dancing out so you last longer. After some dancing at the start of the night, sit a couple out (say you need a drink or use the bathroom whatever "excuse" if you need one). Then you might feel rested and be good for a few more.

 

If you do this a few times you might last a bit longer for the night and not have to hear the insensitive comments. It is hard to hear people make remarks like that; you ARE fun and you'd like nothing more than to be out there dancing!

 

I'm glad you got out and hope you get out some more. (Maybe leave the ones that don't know about your scleroderma at home :-)

 

xoxo emmie

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Jen, I love your answer, :lol: made me laugh alot! :D

 

Normally I'm grand, so maybe thats why everyone thought I was being moany or whatever that night.

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Hi Louise!

 

I'm so excited you are still out dancing!!! I'm a dancer myself and love the clubs. The group of friends I have ended up with (that still love me even though I'm sick) totally understand I can't "shake it" until 3:00 a.m. anymore. I do what I do and then say "I'm done" they all know what that means and I either sit the rest of the night out or quietly bow out all together and go home. The important thing is I had fun while I was able to.

 

I also make sure I don't over do it, or I will be sore and in more pain than normal for several days and then that takes the found out of the night for me.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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i know that feeling but I dont feel the need to expalin myself I used to go out alot but stopped about 3 years ago I was just to ill and felt like a right party popper, my pals stopped asking me out and then I relised they werent realy friends at all, i do go out sometimes with my daughter and partner but sadly dont dance an more it kills me , when I was younger u couldn't get me off the floor and now they can't get me on hahaha , hugs from jaxsxxxx


live life for today and not for tomorrow

 

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