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Muscle Weakness

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Hello,

I have been feeling so weak lately. Just from changing clothes or something minor, I am really weak and have to sit down to recuperate. It is not shortness of breath but more like extreme weakness and fatigue. I get a CBC and liver panel test every two months and things are normal, although my red blood count was slightly lower than normal and my white blood count is borderline low. Is there another blood test I should be getting to explain the weakness? It is really a bother.

Thanks,

Jennifer

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Jennifer,

Where specifically is the weakness? Do your arms and shoulders get tired when you wash your hair or get dressed? Are you having problems getting up from the couch or chairs or going up stairs? If these are some of the weaknesses you feel, then you might suggest getting your CK (or CPK) tested. That's a bloodtest for muscle enzymes. If high (over 200) it could indicate muscle inflammation and possibly a myositis.

 

Regardless, you should bring this new symptom up to your doctor.

 

Big Hugs Sweetie,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Jennifer,

 

Sorry to hear about muscle weakness and pain. Have you checked your medications for side effects? I do have muscle pain and joint pain. I believe it is from medications such as Cellcept and Vytorin. I have accepted to live under these conditions and when pain is too much I take couple of tablets of over the counter medication containing NSAID.

 

I hope you feel better soon


Kind regards,

 

Kamlesh

 

 

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Jen,

I'm sorry to hear you're not well. My arms get tired from folding laundry and showers are exhausting. And shopping? Forget it. It's 2-3 stores then home. It's like the muscles atrophy faster than normal? I dunno. Regardless, I hope rest and love from your puppies & hubby make you feel better.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Thanks Janey and Kamlesh. It is more of a tired feeling I get from doing something as simple as grabbing a drink from the fridge. It's been noticable for a few days. There is no pain though, just muscle fatigue. It could very well be Cellcept but I've been on it for two years now so you'd think it would have happened by now.

 

Thanks!

Jen

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Hey there Jen,

You asked if there were any other tests you could have done for fatigue. I was thinking that a thyroid and diabetes test could be done to rule those things out. Have you been tested lately for anemia...I guess you have if they have your WBC and RBC counts, but anemia could also play a part in fatigue.

 

Hugs &


*WestCoast*

 

********

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again, I have not been diagnosed with Sclero, but back in Feb. I had strep and took the meds and was fine for about a week and a half and then I had a solid 7 days where just getting up and taking a shower exhausted me to the point that I had to lay back down. I have long hair and brushing it out was exhausting. I missed that whole week of classes and there was no way I could attend them. I had no fever or any other symptom besides complete exhaustion and muscle spasms in my legs. I had no appetite whatsoever, but did drink plenty of fluids. My doctor said it was a virus and I had him do a CBC and it came back fine.

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Hey Sweet Jen,

 

I'm so sorry you are having this horrible fatigue right now. I'm just coming out of a 2 week bout of it myself. I can never figure out what causes it, but it does pass over time if I make sure I'm resting during it's duration. If you aren't getting better in a few days you should mention it to your doctor though. He/she may choose to do a bit of blood work. Janey's idea of a CPK would be great.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi everyone and Sweet Sweet :)

You know, come to think of it, I have had the CPK test a while back when I complained of fatigue and it was normal. My Dr probably thinks I am making things up...LOL. I have read a lot on fatigue lately and it can just be from interstitial lung disease. Would my CPK test still be normal if that is what is causing the fatigue?

I just want the way I feel to be warranted, for some reason.

xo

Jen

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Hi Jen,

 

Sorry you are feeling so wiped out. I get the same muscle fatigue you describe. I feel like I shouldn't complain sometimes because I am overweight (and out of shape!) but when someone of your size complains of the same feeling, I feel vindicated.

 

I'm having an exhausting day too. Gonna have to put this one down in the books as a non productive day!

 

Join me on the couch with blankie and remote or a good book.....

 

Hope you have more energy tomorrow.

 

Love,

Barefut

 

PS did you take your "B's" I just took a B complex with breakfast like a good girl.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Sweet,

Yea, I don't think I have official muscle weakness, like Janey and the others. I think mine is from the lungs too. My rheumatologist acted like he didn't know why I had such fatigue when my CPK came back 47.

Is there nothing I can do about it if it's from the lungs? All I have to say is I am so glad I am not working, although the money sure would help.

 

I am also dealing with an infected tooth from get this, November 2005. I just got back from the dentist and this root canal and crown were done back then and it has still not healed. I have to see an endodontist now.

 

No big deal, take it as it comes.

Love,

Jen

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I like to periodically have a Sed Rate (Erythocyte Sedimentation Rate) test done. It is a non-specific test for inflammation. You can definitely feel fatigued if it's above normal, and inflammation is a big issue with Sclero.

 

I've joked with my rheumatologist that I can pretty-well guess my sed rate by how I feel!

 

Craig

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Hey Darlin'

You're not going to want to hear this, but here goes: I know that you hesitate to wear your oxygen unless it's absolutely necessary. Well, maybe that needs to change! :rolleyes:

 

I find that wearing my oxygen really helps to eliminate the fatigue (of all types). With us living a mile high, we really hurt from the lack of oxygen so we need that supplemental. I have a small bottle and a tiny backpack that the bottle fits into. When I'm doing chores around the house (laundry, unloading the dishwasher, etc.), I wear it. It really, really helps! Without it, I get worn out - especially loading and unloading the washer and dryer. That makes my whole body hurt. With O2 - no problem.

 

When I have a bunch of errands to run, I tuck that cannula up my shirt, throw on my backpack and away I go. I have found that people are so nice to those of us with oxygen so I get really good service and lots of assistance without having to ask. :)

 

So please try using your oxygen more. I think you'll find that it really does make a difference.

 

Big Hugs to you Sweetie,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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