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PrincessB

Astis Trial

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Hi,

 

Tomorrow I go in for my first round of cyclophosphomide to 'mobilise' my stem cells, which will then be collected about a week from now. I'm quite nervous about going in now, mostly about the needles as I have a ridiculous needle phobia which is getting worse. This morning I had a bone marrow sample taken from my breastbone and almost fainted from hyperventilation! It is my last day at work today and I'm having difficulty concentrating on tying up the loose ends, what I really want to do is get home, pack and get things in order (and have a nice meal before the hospital food ;) ).

 

Will write another update after I'm 'mobilised'.

 

B x


Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

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B

Certainly can understand your lack of concentration today! You are fixing to undergo something very exciting and revolutionary. It takes a strong person to volunteer for one of these clinical trials, so you go girl!

 

I hate needle also so when they go to do the "poke", I look away and take a slow deep breath then let it out. It really has helped.

 

When you feel up to it, let us know how you are doing. You'll be in our thoughts.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi B

Your post has corrected one of my misconceptions- I was convinced that hospital food in France mut be better than in the UK- but now I know otherwise!

 

wishing you the best of luck with the treament

 

lizzie

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Hi, PrincessB. Hope I didn't miss you, but I will be thinking about you. Like Janey says, those of you who volunteer for these clinical trials are the strong ones. I will be keeping you in my thoughts during your mobilisation. Keep us posted when you can.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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