jaxs

Raynaud's

15 posts in this topic

i have suffered from raynaud's for about 11 years now , and always my hands fingers and toes turn white , yesterday I got very cold and when my hands turned white they then turned black :o I was very worried as that hasn't happened before...is this normal ? im in a lot of pain with my stomach and im also excperience IBS , im not so tired at the moment but my body aches, i read some where that u can live a normal life with this condition,,,,im yet to experience that haha,,u all take care hugs from jaxsxx


live life for today and not for tomorrow

 

Share this post


Link to post
Share on other sites

Hi,

My hands go to dark purple , but have never gone black. Did it stay black or go back to normal color? If it's staying black you should see a doctor.

Nan

Share this post


Link to post
Share on other sites

Hi Jaxs, yes please do see a doctor if your fingers reach a black color and not the typical blue/purple color. There are medications to increase the circulation in your fingers. In the meantime, try to keep them warm at all times.

 

Has your rheumatologist considered you for Plaquenil for your aches and pains? Has he tested you for RA?


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

im seeing my doctor at the reeman hospital in sept then she will start me on medication she says but untill she knows the results of the tests says she can't give me any thing as I may have diffuse on my lungs , when my fingers turned black it lasted for about half an hour and thanks I will see the doctor as soon as hugs from jaxsx


live life for today and not for tomorrow

 

Share this post


Link to post
Share on other sites

jaxs, sometimes when my feet are not moving for a long time in a cool air, they turn more "black" than purple or something.. it's funny cause I've never seen my toes to turn white as my fingers, but they feel very cold often anyway. (maybe it's because I wear socks almost all the time :D)

Share this post


Link to post
Share on other sites

hi jennifer.

my raynaud's started about the same time in both hands and feet. my entire toes get a dark violet color when cold, and they burn. especially the little toes.

 

sharon

Share this post


Link to post
Share on other sites

Hi Everyone,

 

Along the same Raynauds line......can one have Raynauds inside their body (core body) and NOT have it in their fingers or toes? It's 75 today and Gareth is wrapped in a blacket with long jeans on and a short sleeve shirt. When the AC is on, it is set at 76. His hands and feet aren't ever cold......just wondering. He has been this way all summer....wrapped in blankets.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hi Jen,

 

My first Raynauds attack started in the feet a few months ago (my toes and also the bottom of my feet).

 

My hands also get very cold but have noticed the past week instead of just staying extremely white they can also turn the palest blue colour in my fingers.

 

Thanks

Celia

Share this post


Link to post
Share on other sites

The Raynaud's phenomenon is caused by circulation being cut off in the extremities (hands and feet) to preserve the core temperature. If there isn't any involvement in the hands and feet, it is unlikely that is Gareth's problem. On the other hand, he could have Raynaud's but is not showing any changes because he is being kept nice and toasty. Other things can cause a person to feel chilled including infection, depression, thyroid problems and anemia.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Mine started with my hands, actually just one finger. It was like that for about a year, then it progress to to other finger on the same hand and then down to my toes. Now it's moved to my other hand as well. Not all fingers are affected at this time. I find that putting my hands in warm water really help out so much when I have an attack. A warm shower can work wonders too. I have never experienced blackness before I would definately see a doctor for that.

 

Best wishes, :P


Take care and stay warm,

 

Michelle

Share this post


Link to post
Share on other sites

Jaxs,

Yes, my hands go dark purple/black. I also have lung involvement. What I didn't realize is that when my Raynaud's is triggered in my hands, it is also triggered in my lungs. I take Procardia to control the Raynaud's and I also have an emergency supply of Viagra. It is a scary thing and for me stress can trigger it in an instant along with any type of chill. Gloves and warm weather are your best defense. Best of luck Gidget

Share this post


Link to post
Share on other sites

jaxs,

 

My rheumatologist suggested Thermabands, which are fleece holders for hand warmers that are worn around the wrist for keeping my hands warm. I thought that I might try them this winter.

 

Also, have you done any research on Scleroderma Gut? Before I was diagnosis with SSc they cut me open because I was in so much pain (pseudo bowel obstruction). The antibiotics for intestinal bacterial overgrowth have changed my life.

 

Joel

Share this post


Link to post
Share on other sites

Raynauds in your lungs? Humm... what's that... I have raynaud issues in my fingers and toes daily. Once in a great while I get it in my core - I can relate to Gareth. The other day I had this. Its 72 in my house, 100+ outside and I'm in bed with 3 blankets, fat sweats and socks and still cold as a popcicle. Nothing has ever turned black on me though...

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

well thanks for your replies I got gd info from them all , and no matter wot the wether is in sunny england(NOT) ,haha I wear gloves socks and I have a huge parker , and sometimes I have a hot bottle haha my kids call my coat I know wot u did last summer coat, coz its huge, but thermal and I love it haha in bed I have a fleece on my sheet and a few blankets and sometimes a hotbottle I feel the cold no matter wot, i visited oz in 2000 and people there must of thought I was a nutter theres me in winter clothes and them in skimpy summer clothers haha, i dont go swimming now coz that kills me tho I love it :( but life goes on hope u guys have a great day thanks again hugs jaxsx


live life for today and not for tomorrow

 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now