Sharonvandee

Aniticardiolin Antibodies

4 posts in this topic

Just curious

 

Has anyone else been told that that have anticardiolipin antibodies?

 

Are you being treated for it and if so with what

 

I have rising level and they are doing very little so I am just curious


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Hey Darlin'

I did a little search on the site for anticariolin antibodies and it found that the presence of them seem to be related with Antiphospholipid Syndrome (APS). You can do a search on the page for "anticariolin" and you'll see several research articles on them. Here's one I found extremely interesting.

 

Anticardiolipin Test and the Antiphospholipid (Hughes) Syndrome: 20 Years and Counting!

 

It was under Causes of Antiphospholipid Syndrome. It does look like it is something you should continue to track and discuss with your doctor.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thanks Janey

 

That was a great article very informative.

 

I only found out I had this problem when I went on the IVF program aftewr many misscarriages.

 

In 6 mths my levels have gone from 6 to 50 so yet the doctors are sweeping it under the carpet and more worried about the other issues. That the problem when you get complex medical issues the DR start to get bamboozled and dont knopw where to start or what to treat first I spose


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Hi Sharon.

I had a positive result of cardiolipid and then a negative. It seems to go back and forth. My doctor put me on a dose of asprin a day. My blood is checked periodically. I've had advise from many people, saying that I should be on blood thinners, my doctor said I don't need to, because I've had no problems, yet.

Gizelle

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