Jump to content
Sclero Forums
WestCoast1

Heartburn Relief?

Recommended Posts

Hello Forum,

I have heartburn everyday!!!!!! It burns in my throat and is like a fire in the stomach. I was prescribed Aciphex but that just doesn't help anymore....I tried an OTC antacid and that turns my toung Brown in the morning, (very weird!!!), so I am at my wits end.

 

I have heard some of you taking other things like Prilosec, but I dont want to waist time and $$ if it isnt going to work any better than the Prescription Aciphex.

 

I can't see the Dr. until the new year, and I really can't take the daily sore throat, reflux and heartburn.......help!

 

THANKS...


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

hi erin,

the "gold standards" for serious reflux are prevacid and nexium.

these two proton pump inhibitors are in the same class of drugs as aciphex but from the info I have received from various GI specialists, these seem to work better for serious and longterm reflux. i personally was on prevacid for two years for my reflux and it just wasn't working well enough as my sclero worsened. i was scoped and had a severe esophageal erosion ( i figured it was pretty severe just from the pain alone). my gastroenterologist switched me to prevacid 30mg caps and repeated the endoscopy 6 months later. i was 90% healed. i am still doing well on this med several years later. also helps to eat lots of fiber, skip the really fatty, greasy, and spicy foods. you know, the ones that creep back up in the middle of the night. also don't eat late at night and elevate your bed. also, ask your GI doctor about promotility drugs such as metoclopramide. these can help food to move in the right direction instead of sitting in your stomach for hours. this one also helps nausea. bottom line is to find a medication that works for you. or a combo that does. gerd can be very serious, so don't settle for a medication that isn't giving you relief !

take care, janet

Share this post


Link to post
Share on other sites

Erin, I think maybe, Janet meant to say that the Nexium helped clear her up 90%. Nexium is great if you use it correctly. If you call your doctor's office and tell them your concern maybe he will give you some samples or just call in a script for you. Usually, they have samples for you to try. They might not make you come in for an apt. Now, for the Reglan (metoclopramide) they may need you to come in for additional tests to see that your really need it. I was eating antacid tablets by the bottles. Before Nexium. I have tried almost all the scripts for GERD. Nexium and Reglan are tops. But it still took a couple months to get under control. They aren't an instant cure. I take 3 Nexium and 4 Reglan daily to control my problems. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hey, Erin, I have taken prilosec. Am now taking nexium twice a day, and my dr just gave me some zegrid. I am seeing a different dr the 28th of this month and he will probably do a scope to see just what is going on. The prilosec worked, but nexium worked better for me. Glad you are getting it checked out, as gerd can be very serious. Janet has some good advice in her post. Good luck.

~whirlway

Share this post


Link to post
Share on other sites

Erin, I was on prilosec for a couple years and it quit working. I now take nexium and it works great. I also am on reglan and carafate for nausea and motility problems. Like Sheryl said, you may need a scope to see if you need the reglan. Hope you can find something to help you, heartburn is the worst!!

 

Sherion

Share this post


Link to post
Share on other sites

Erin,

I've tried various prescription ppi's but I keep going back to prilosec. My rheumatologist wrote me a prescription for it so that I can use the cost of it toward my medical expenses since it's the only thing that works for me. I do have to take two a day which ends up running over $30/month just for heartburn medicine, but the relief is well worth it. I hope you get some relief soon. You need to take care of that heartburn so you don't end up with esophagus damage.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Erin,

 

I feel your pain, I have been on Prilosec for couple years now and if I'm correct it tends to be a cheaper prescription than some others. As long as I don't go to crazy with the fried food I do ok.

 

I have a feeling that one day I will have to try something new, but my budget allows this, so I just watch what I eat. Instead of tums there are simethicone tabletsm, I use if I have had my meds and I had a little two many french fries.

 

Good luck and don't wait to long to get help tummy pain is the worse.

 

take care Beverly

Share this post


Link to post
Share on other sites

Thank you, thank you, thank you!

 

So I think I will make that call into the Rheumys and see if they will give me some samples without an apt. that was a great idea.

 

I will have this checked out as soon as I can.

 

In the meantime, i sure do miss salsa, Thai food, Mexican food, soda, pickles...oh the list is too long.

 

Thanks for your help,


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

hi erin,

 

glad someone caught my mistake. guess I was a little tired when I replied. i meant to say that I was on prilosec for two years (this was before diagnosis) and my erosions (esophageal and stomach) were getting worse. then I was scoped and put on prevacid. it made a huge difference in just a few weeks. it just goes to show how some drugs can have such different effects in different people.

janet

Share this post


Link to post
Share on other sites

I too have been taking omeprazole (the British equivalent of Prilosec) for nearly two years, though I didn't really have much of a problem with reflux or heartburn at the time. I had previously been taking Celebrex, but the NHS is not prescribing it anymore as a rule. When they substituted NSAIDs for the Celebrex, they gave me the omeprazole to prevent damage. In the last year, I have developed problems with reflux in spite of the proton pump inhibitor. It has been something of a scavenger hunt researching and implementing various additional helps. I think the greatest effect came from eliminating caffeine and cutting way down on fatty foods. I have also eliminated chocolate (it has a triple whammy, apparently, with the caffeine, fat and theobromine which relaxes the lower esophageal sphincter). I discovered in my research that peppermint also has this effect - and I had been popping mints in the idea that they were helping. Alcohol taken with meals is a problem as it also relaxes the les and makes peristalsis erratic. I love spicy food and find that eating peppery things helps reduce my arthritis pains. Unwilling to give them up entirely, I have learned that more frequent small meals works well. I have given up citrus fruits and juices. I also don't eat anything at all in the evening and drink a lot of water. I have added blocks to the head of my bed, wear unconfining clothing, keep vertical for at least an hour after meals. I found a liquid indigestion remedy that has alginate in it and aniseed flavouring. If I wake up with that horrible regurgitation in the night, a slug of that will stop it in its tracks. It is nasty and slimy, but does the trick.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Wow~

everyone has great advice for heartburn/reflux sufferers. Thanks!

 

So Jefa, what is theobromine in the chocolate? I have learned so much, and I need to do a few of these things on your list before I give up totally on my heatburn...so thanks!


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

hi everyone....i too have all the problems with gerd you all have....i have gathered a list of foods that are really no no's for me....might help you all.....cinnamon, pepper, hot and black, chili powders, anything citrus, peanut butter, spicey tomato sauces, chocolates, nuts, onions, soda pop...and the list goes on....read labels...things with citric acids will do it too....for coffee lovers....there is an acid reducer in coffee mate that helps for the coffee....i can't do without my coffee in the morning so I use coffee mate in it and it helps.....it also helps me if I think I will have trouble with the heartburn I take a tablespoon or 2 of maalox max and that stops it....i have trouble getting rid of the gas...food sits on top of the gas and will back up maalox helps that......just my 2 cents worth....good luck

Share this post


Link to post
Share on other sites

Theobromine is an alkaloid found in chocolate. According to Wikepedia, the name comes from the genus of the cacao tree, theobroma, which means food of the gods. It is one of the reasons for chocolates mood elevating effects. It's also the reason chocolate is lethal to cockatiels - they can't metabolize it.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi to all,

 

Reading through the list, I see it's pretty clear our reactions to different drugs are different from person to person and within the same person from time to time. Reglan was a disaster for me. I had every one of the possible side effects with the exception of suicidal thoughts. Watch this one! When it's good, it's very, very good but for some of us it can be lethal.

 

I don't find much difference in my body's reaction between Prilosec and Nexium. I take 40 mg of Prilosec a day and sometimes bump it up to 60 mg when I'm under stress. I still need the occasional antacid tablets and you're right about the ugly coat on the tongue (ugh!). A tongue scraper and alcohol free mouth wash helps.

 

I don't have much trouble with different foods but have had periods where I have had to give up wine (sob!). I find small meals several times a day helps and counter to what works for a lot of other people, a small glass of milk and a low sugar biscuit (like McVitey's Digestive) a half hour or so before retiring gets me through the night better than a few hours' fasting before bedtime.

 

In other words, you will just have to keep on with trial and error until you find what works for you. DO NOT put up with pain. There is relief out there, it just takes some time to get the right combination for your body.

 

Good luck hunting!

 

Lindy

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×