Patty

Sclerodactyly

7 posts in this topic

My fingers are starting to curl and I was wondering what others have done to help this. I was thinking about a stress ball to work my hands but not sure if that would do any good. I see my general practitioner tomorrow ( maybe) and will ask him anbout it but wanted to touch base here first so I can tell him what others have used to help.

Thanks guys!!


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hey Patty,

 

I do know there is a device that is a type of finger exerciser that helps people. I will try to remember the name and get the information to you. Someone may beat me to it - someone that's memory is better than mine!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thanks Sweet!! I really want to nip this in the bud if I can and based on how things have been with my doctors I doubt that they will be any help for me. One Dr won't give me pain meds and the other won't, says my general practitioner has to so I bet I get that run-around with this too.


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Patty I am still trying to think of the name of the exercise device and can't! My brain is not working. However here is a link from our site here that mentions a booklet you can get that has hand exercises in it.

 

I'll keep thinking........ (I hate it when this happens. ) :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Patty,

Oh honey I am sorry this is happening. I do not have that symptom so I really do not have any words of wisdom. Do you know why this happens?

Take care and hope tomorrow is a good DR visit.

jennifer

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Hi Patty,

 

I have been receiving PUVA treatments on my hands and feet for the past two to three years. I went twice a week at first, and now go once a week.

 

The PUVA treatments seem to have helped stop the puffiness and skin tightening, and then slowly improved them. It also seems to help with my Raynaud's.

 

The improvements were slow, but I noticed a difference within a few weeks of stopping treatments. I had to start again.

 

Best wishes,


Ron

 

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

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Patty, I was having those problems quite a while ago, and went to physical therapy. They did hot wax treatments on me plus exercises, and also made casts for both arms that I had to wear every night. They were half casts that I wrapped on with ace bandages. Not too comfortable, but it did the trick. Haven't had and problems lately.

Good luck.

~whirlway

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