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hey there,

i have been haveing blinding headaches for about 4 weeks now, if not longer, but last week was the worst ever it feels like my head is going to explode and the pain down the back of my neck and just the top of my shoulders hurt so bad , ive spent days in bed as well as the pain im putting on weight like theres no tomorrowand being in bed all the time I understand , but im ill most of the time and the tireness well thats another matter, i always seem to moan on here , one day ill have something gd to say :unsure: hahawell I go and see doctor next week so maybe then ill have some peace of mind. well hope u guys are being kind to urselfs thanks for ut time to read hugs from jaxsx

live life for today and not for tomorrow


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Hi, jaxs. I am so sorry to hear about your blinding headaches. Which doctor are you seeing? Do you have access to an urgent care clinic? You may be able to get some advice about your headaches sooner than next week.

Warm wishes,



Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Jaxs,


I too had also suffered from migraine headaches, 4 in one week, and was beside myself. I found that light was my biggest issue, coming from outside to inside was sure enough to trigger one.


They have disappeared for the moment, which I am so happy about :) .

You mentioned that you have a neck problem, maybe it is your neck and shoulders that are causing the problems ( I am not a doctor).


I had similar problems a few years ago, I worked then at a hospital as a clerk and the Physiotherapist there mentioned that maybe it was time I changed my pillow. Apparently there are alot of nerves that run from the shoulder to the neck area, if they are very tight this could be the cause of your headaches.


I hope you get some relief soon, good luck.


Best wishes


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