beaty71

Good News

5 posts in this topic

Hi everyone,

A few months back I posted a concern of mine dealing with my 15 yr. old son. He was having problems with his hands back in the spring, he showed them to me and to my horror it was obvious raynaud's. He hasn't had anymore episodes since the spring. Well when I took him to the doctor for his sports physical he ran the blood tests, I just got the phone call and his ANA is neg. :D I am so excited, I just had to let someone know. I wanted to post this because I know if anyone knew how I have felt about this it would be all of you. Thanks for listening.

 

Take care and soft hugs,

Diana


Diana

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Hi Diana,

 

I am so happy that you are feeling so good about this! However, not to knock the wind out of your sail, but ANA's can go up, down, positive and negative and that doesn't mean the disease process is gone as well. I have Lupus, Sclero, and Sjogrens and my last ANA was negative.

 

Continue to monitor his symptoms and don't ditch any doctor appts. :)

 

You take care,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Diana,

I'm so glad to read that your son has not had anymore Raynaud's episodes and testing negative for ANA. All good!!! I do find it interesting that an evaluation for sports would test the ANA. Good to know.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thank you for the replies, when we went in for his sports physical I talked to the doctor about his raynaud's episodes and told him about my scleroderma. He put the labs in the computer so we could go when Justin felt comfortable, a few days later I had to go in for my normal blood work so we did it together.

I will continue to watch him Sweet, my 9 yr old tested a year and a half ago because of some problems he was having. His doctor knew my history so she decided to check everything, he turned out to have high pos ANA, neg RA. The problems he was having turned out to be pnuemonia, she finally found it with a CT Scan. In the meantime he went to a rheumatologist and was retested, still testing high positive, the doctor told me he had no signs of active disease, said he may never develop it, or could later in life and told me to try not to worry too much. He never has shown any signs, he is very active-plays football, baseball, basketball and anything else he has time for. I always worry anyway, everytime there is anything wrong. I guess all moms do, but to think that I could have passed this terrible disease on to my beautiful boys kills me. I have an 11 yr old also, but there has been no reason at all for him to be tested yet, knock on wood! Sorry I'm rambling on, my kids are who keep me going everyday. I just hope everyday that they never develop any CTD. Thank you for listening again. Diana


Diana

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