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Hello all:


Being from Florida, I have not had much experience with Raynauds. I have seen my toes turn blue and white every now and then, but it was a seldom occurrence. In fact, early on I was under the impression I didn't have it. Well, last Thursday through Saturday, my wife and I made a trip to Northwestern, in Chicago, to see Dr. Burt, who is an expert in stem cell transplants and Dr. Barr, a rheumatologist. They are both involved in a clinical trial entitled The ASSIST Trial. In any event, the minute I stepped off the plane, my hands turned bluer than blue. Though I sympathized before with those suffering from this disease in cold climates, I even have more sympathy now. I am also now convinced, more than ever, that I have Raynauds. It simply has not been much of a problem because of where I live. Thankfully, my wife bought me gloves before we left for Chicago. My heart goes out to all of you in colder climates. While Chicago is a beautiful city, it was good to get back home.


Dave in Florida

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Hi Dave.

You are lucky to be able to live in a warm climate aren't you?

Up until a few years ago, when a patient saw a doctor about Raynaud's, they'd often get told that the best prescription is to emigrate somewhere warmer!

Anyway, I am thinking of spending a vacation in Florida shortly, so I hope the warm weather continues! I know that I won't be wanting to return home to chilly England too quickly though!

Thanks for posting your 'sympathies' :rolleyes:

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I didn't know what I had was Raynaud's for the longest time. At first I thought it was just the air conditioning in my office. I kept getting relocated to another desk and still had frozen fingers and toes. I built leg guards out of cardboard to surround my desk, kept a pair of warm slippers under my desk and wrapped a lap robe around my legs. I always wore long sleeves and made half mittens out of cut off crew sock tops, so I could have the ends of my fingers free for typing. I never saw any blueness, just white and the pepperoni red when the blood came back. The first time I saw blue was earlier this year when the wind was blowing empty wheelie bins around in the street. I went out in my shirtsleeves and sandals to get our bin, and when I came back in I had smurf hands and toes. I have since noticed that it is more likely to happen with a strong draft than an actual lowering of temperature - my fingers turn white in the freezer, but don't go blue, but when my whole body is in front of a fan, I will get blue toes, even though the room temperature is not particularly cold.

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Living in FL has exempted me from it, maybe because I am in . FL. HA Mine goes from red, to blue and then when it is really bad white. I sure hate the way it feels when I am trying to use my hands like typing or one of the other zillion things I do with my hands.


I never really pushed for a diagnosis until I was in for an outpatient surgery. My oxygen alarm kept going off. When they realized I was hearing it they turned the alarm off. On the way out the Anesthesiologist told me that I needed to look in to Raynauds. I went to a rheumatologist that was worthless. She told me I didn't have it...along with the list that the labs had uncovered. I changed doctors and confirmed the whole thing. A diagnosis has not fully been given but it looks like Lupus and/or Sclero.


I have been having a series of small surgeries and each time it is worse and worse to get the oxygen count. I am scheduled for another next week and that concerns me. According to the progress it is making I really doubt that they will be able to get any reading. The last time they were able to get one reading and went with that.


I tried to talk to a nurse about that and she kept telling me "no problem" and "if they can't get a reading they will not do the surgery". NO PROBLE that's nuts.


Then I asked the surgeon and he wasn't aware of the problems but assured me there would be no problem. I told him if that IS a problem I will tell them to talk to you.


This is crazy! Any idiot would know I am getting oxygen and I believe anyone with any medical understanding would know my levels are OK. Have any of you run across such as this?


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Hi, The first time I noticed my raynauds was when I would hang my wet laundry outside in the winter. I don't do that anymore when it's below freezing. I also find that it happens when my core body temperature goes down as opposed to just getting my hands cold.

Hugs, Pipes

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