• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
peanut

High Pulse Rate

16 posts in this topic

Hi Friends,

A short update: I'm on FT oxygen now. My sat rate dropped to 84. Yikes, but now it's better. Just got a pft and ct scan done. Ct scan results reads: shows slight worsening. Pft results read: Volume is 38% and Diffusion is 33% - that's why I'm on oxygen. I've got the numbers but I go over them with my lung doctor on Tuesday.

 

During my last check up with my rheumatologist my BP was high so he put me on Diovan. I'm also on meds for PH. My rheumatologist asked me to get a BP machine and track my numbers. I've been doing this for over a month. I averaged my numbers and my BP is within normal range but my pulse rate seems high: 107. Hum? Should I be concerned? Meds for asthma and caffeine can cause a rise - both of which I take. Can't resist a little diet soda. I can't exercise and have little anxiety - I take anti-anxiety pills too. Is PH considered heart disease? Heart disease can also cause a rise. Hum...

 

Your thoughts...

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

*sigh* no one has answers... oh well it as worth a shot...

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Hi Peanut

 

My rheumatologist also told me to get a BP machine and take my bp daily. If it gets too high see my doctor. Am on blood pressure meds and my bp is low if anything, but my pulse rate is always high....anything from the 90's to 130's. When I told my doctor about high pulse rate he said it is nothing to worry about. I hope this is true....but I'm not sure, it does worry me a bit.

 

Helen

Share this post


Link to post
Share on other sites

I suppose everyone is off with their families, doing last minute shopping before school starts, etc. I am sure you know more about the pulmonary stuff than I do so I will leave that for those who are lung savvy to jump in with. I am wondering about the effects of the caffeine, especially since you are dealing with anxiety, too. You really should consider whether indulging your cravings for the diet soda with caffeine is worth the risk.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, Helen. After posting, I searched a bit and found this Mayo article on Causes of Tachycardia. According to the article, there are quite a few things that can cause it, some involving heart disease and others without underlying heart disease, two of which are, "emphysema or other lung diseases and exposure to heart stimulants, such as caffeine, tobacco, or alcohol."

 

In my opinion, any significant change from the norm is worth looking into.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Peanut-- I too am on a medicine for hbp, my pulse is usually high. If you can take your oxygen and walk a little bit everyday, not strenous walking though, that may help your pulse rate drop some, crazy as it sounds

 

 

Take care

 

Tammy

Share this post


Link to post
Share on other sites

Tammy & friends,
Thank you.
For saying I'm not anxious I'm sure acting like it. He he.
It's super easy for me to be a permanent cave dweller and never leave my home. I've been try to make a conscious effort to get out of the house at least once a day to the grocery store - somewhere to walk around. Yesterday I walked on a treadmill lightly for 20 mins and I think I'm paying for it today. Soooo tired. Maybe I should just stick to grocery shopping-exercise.

I suppose I just want to know what the doctor thinks of my ct scan, pft and my next line of treatment - and Tuesday just can't come fast enough. I think they may have to do another round of IV cyclophosphamide because I did well on it.

After my doctor's appt Hubby & I are also going to look at getting a pet, most likely an orange cat. Hooray.

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Hi Peanut

Like Helen, I have tachycardia (pulse above 100) much of the time, even wake up with it during the night. In fact was the reason that I ended up being diagnosed with SSc- was referred by my general practitioner to see cardiologist who after running tests decided did not have a heart problem , but as had +ANA and cold hands referred me to the rheumatologist. Still have the tachycardia but nobody seems particularly concerned about it.

Lizzie

Share this post


Link to post
Share on other sites

Hi Peanut, I was having a resting pulse above 100 also. I was put on a Beta blocker because my BP went up and it has brought my pulse down to the low 70's. The only problem is the beta blocker makes my raynauds worse. My Dr. decided to go with this instead of a calcium channel blocker because of my migraines. He said that the ccb would make them worse. I don't really understand it all but I do feel better with the lower pulse but I have to be diligent in keeping warm.

Hugs, Piper

Share this post


Link to post
Share on other sites

Hey Darlin',

Sorry for the delay in responding. As Jefa said - with the Labor Day weekend many people are taking a break from their normal routines. I've noticed overall that the forums have been really quiet this weekend.

 

Jefa provided a great link on tachycardia. Please explore that site further because it has lots of great information. One thing it mentioned was that when the heart beats greater than 100 that more oxygen is required. So it's good that you're using your O2 FT. I have another form of tachycardia - atrial flutters and fibrillations. And as you know, I also have lung problems.

 

The way the cardiologist explained it the other day is when you have lung problems it affects the heart. Because of my mild PH and ILD he thinks the arrhythmia is caused by the lungs. So treating the heart is like the "tail wagging the dog." He wants to wait and see if we can improve the lung situation and then see if it improves the heart.

 

AnyWho - Based on what you've mentioned already (am I certainly no doctor!), it sounds like your fast heartrate may be attribute to many things: high bp, caffeine, anxiety, medications, lung problems, etc. Please discuss it with your doctor tomorrow. They can have you wear a Holter monitor for 24 hours (I think) to monitor your heartrate and find out what it's really doing. You also asked if PH is considered heart disease? If I'm not mistaken, the disease is PH, but PH can cause heart problems. The lung - heart work together, so when you have a problem with one, it COULD, but not always, cause a problem with the other.

 

Sounds like you have a lot to talk to your doctor about tomorrow. Hopefully, you have the type of doctor that will take the time to answer your questions. Please let us know how the appointment goes. It will be interesting to hear what he says! In the meantime, try to calm yourself Darlin', relax. Find a good book and lose yourself in it.

 

Big Hugs to you,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Piper: I've just read your post re your doctor not prescribing calcium channel blockers because would make your Migraine worse, I was told might have positive effect , and have found that I have had many fewer than normal since starting on Nicardipine.

Lizzie

Share this post


Link to post
Share on other sites

Hi Lizzie, Thanks for posting. I find that interesting and I'm going to run it by my g.p next time I'm there. If it can be helping my raynauds at the same time as migraines I should be on it. It was explained to me that they were 2 different problems with the blood vessels. Frankly I've been a little worried that I was getting the right treatment as my kidney function is down with no explanation.

Thanks again,

Hugs, Piper

Share this post


Link to post
Share on other sites

Hi friends,

We adopted a 1 year old kittie. She's under the couch now. She's mixed - some white, brown, black and orange. Kinda motley but cute. She came with the name Abbie and I think we may change it. My kid sister's name is Abby.

 

My lung doctor said high pulse rate is expected with interstitial lung disease. *whew* She's going to let my rheumatologist decide on the next line of treatment. So I wait... maybe I'll see if I can move up my appointment. She also said despite the CT showing worsening I'm still "functional" and can wait to discuss transplant. *whew*

 

She thinks my skin looks works and noticed hyper pigmentation on face and forearms. i have dark freckles on my forearms. They're all kinds of sizes. Might this be "salt and pepper" skin that can be associated with sclero? Hum.

 

Thanks friends. It's been quite a morning. Picking out a new pet is exhausting. They're all so cute.

 

peantu


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Hey Peanut,

 

You have a feline! What about naming her Felix...no?

 

Sound like you had a long day. I didn't realize your pulse can be hgher

with ILD. I thought supplemental oxygen took care of that but what do I know.

I am sorry, you must be so stressed.

 

I hope you can get an earlier appointment with your rheumatologist and get this all under control once again.

 

Take care and so happy you have a new buddy.

Jennifer

Share this post


Link to post
Share on other sites

Oh forgot: also learned that when you exercise with ILD it's okay and expected to have a sat rate of upper 80's... good to know our boundaries.

 

Can't wait to get my new pulse oximeter in the mail so I can track my sat rate.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Hey Peanut,

 

Obviously I am late in answering this. I've been down trying to cope with this flare I'm in. It gets the best of me most days.

 

Looks like you received all the great advice you needed, but just wanted to let you know your pulse rate isn't surprising to me at all, given ILD and factoring in your meds.

 

How is Clementine? Did you go with that name for Abby?

 

Much love,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now