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AZ Windie

Glad To Be Back

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Hi everyone, Its been awhile since I've been here. Alot of things have happened to me since I was last here. In early October I had extreamly dangerous emergencybrain surgery. I had gone to my primary care physician thinking I had the flu, however, she sent me to the ER where they did a Head CT and discovered a 3cm tumor on the right side of my brain.Where the tumor was located was in a very dangerous area,But there was no choice, with the surgery I at least had a chance, without it, I wasn't going to survive long.Doctors gave me maby 1 monthwithout surgery. So, I really had no choice. They scheduled emergency neuro surgery which I had on October6th. I'm now recovering, slowly. The doctors say it could take up to a year for full recovery. I did lose some of my vision, and have some slight neuro deficits, however, I'm working very hard to live beyond those problems. I was very lucky, as the first words I heard aftersurgery were " Windie, the tumor was benign". Those were the greatest words I've ever heard. All I could think of before the surgery was, ' 'How am I going to copw with bothsystemic scleroderma AND the possibility of brain canceer as well. But, I was spared that terrible situtation. As with the sclero I've accepted that I've lost some of what I had prior to the surgery, I think living with Sclero, you have to learn to accept things and try to live with in our limitations. This is just another challange I'll have to concure.As all of us with Sclo know, we face challenges every day, and we concure those challenges every day. I've honestly thought of you all so many times, However, this is my first attempt to actually sit and try to type. If there are mistakes in this post,, please accept my apology. I've had to relearn how to type, and this is my first real attempt.I'm Please know that each of you are in my heart and if I can ever be of any help to any of you, I'm here. To those of you newly diagnosed with sclero, please know that theres a wonderful life after hat diagnoses. I turned 58 on October 22nd. and I know that there are challanges ahead of me. but I also know that due to the Sclo, I've gained the strength to overcome all of them, and each of you will do the same. I think those of us with Sclo are some of the strongest and bravest people I've ever met.Please always remember, Scloderma is something we "have", but its not who we are. We can all learn to live beyond the Sclo. I send you all my warmest thoughts and wishes. Love Windie

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Hi Windie,


I am so glad to see you here in the Forums and see you posting your first message. I have thought about you often and wondered how you were doing. I am so sorry to hear about your brain surgery, but so glad to learn the tumor was benign and you are doing better! I am sure your attitude will take you far!


Warm wishes,


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Wow - You've been on quite a ride Darling. I'm so sorry to read about the brain surgery. However, what a relief that it was operable and benign. Thank you for taking the time to share your story. You're a brave woman with a great attitude. BTW - Happy Birthday to us on Oct 22. I just turned 53.


We certainly look forward to hearing more from you and your participate on the forum.

Big Hugs,

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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What a powerful example you are to those around you and all of us. Please take good care of yourself and allow body time to rest and heal.


All my best wishes to you for a complete recovery beyond what you hope for.


xoxo emmie

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