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Clementine

Skin Involvement

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My understanding is that if the thickening occurs above the elbows, and down to chest etc. etc. it puts you in the "diffuse" category.


Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma

Normal PFT(July 06), ECG(Nov/06)

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Jen,

 

I agree. I was first told that I had limited sclero, back in '98. After being seen by one of the top sclero specialists last year, he informed me that I had diffuse, because my chest skin was involved. Anything other than the hands, feet, face and neck, falls into the diffuse category. At least that's what I was told.


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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Thanks y'all, said in a slight Arkansan accent :)

 

Jefa, no I have no skin involvement and am 99% sure I never will. You'll never guess...one of my Internet friends has skin involvement and it is now on her trunk. I told her to join here, as it's a wealth of information. I honestly don't know how people with Scleroderma can NOT be a member here.

So, I was helping her. :)

 

I am all good!

Jen

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I have diffuse also. My trunk has started to soften. Even my gyn noticed it! I wish the rest of my body would soften as well, but I am grateful for what has happened.


ISN Artist

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Jen:

 

You ae so right. Such a fantastic siite with "our family" of conditions. I would have been lost had I not been surfing and found this family. I was so alone, disillusioned and lost. This group is a godsend and my reason to cope. love you guys..........thank you, thank you, thank you


Tru

 

It is what it is...........

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