Jump to content
Sclero Forums
Tammy

Rheumy Appointment Thursday

Recommended Posts

Well the day is almost here. I think that I have everything that I need to take to the appointment...primary care physician, surgeon, ob/gyn, pain clinic, physical therapy records, pictures of Raynauds attacks and a list of questions. I was just wondering what I should expect as far as tests and things, do they usually do those on the first appointment and if so what should I prepare myself for?

 

I just want to say again what a tremendous help you have all been to me the last couple of months, thank you all so very much for all of your help and support. I would never have gone through with this without all of the great information and advice you have given. I wish you all the best!

 

Big hugs

Tammy

Share this post


Link to post
Share on other sites

Hi Tammy,

 

At my first appointment my rheumatologist looked at my nailfold capillaries with her lighted "peeker" as my son calls it. She also examined my skin, listened to me breathe as well as listened to me talk.

 

Then she ordered a bunch of labs, I gave a bunch of blood and was on my way.

 

It sounds like you are well prepared. Good job and good luck!

 

Take care and keep us posted,

Love,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Tammy,

I am so impressed at how prepared you are. Its really hard to predict what will happen at any appointment since every doctor works differently. I like to think that every doctor has your best interest at heart, and go from there. Some doctors seem stern, and some friendly, but in the end what you hope for is someone that takes into consideration everything that you brought and your verbal statement.

 

I would expect that he will have you do a few more blood tests and possibly an x-ray. He might then schedual you for another appointment to go over with you the results. He may or may not have a concrete diagnosis for you...these take time.

 

I hope that you find your doctor to be smart and trustworthy. Please let us know what happens and how you are feeling.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Hi Tammy~

 

I glad to see that your so prepard for your visit. Ask lots of questions don't hold anything back even if you think it's silly. Make sure that your dr's gives you all the time that you need to understand what's going on with you. If you don't understand what he's saying ask him to tell you in words that you can understand. I was stuck with a rheumatologist for 4 years who kept in the dark as to what was going on with me and I just recently went for a 2nd opinion and ###### did this new Dr make the world of difference. You need to have a really good repoir with your Dr.

 

Good luck and I hope everything goes really well at your visit! ;)


Take care and stay warm,

 

Michelle

Share this post


Link to post
Share on other sites

Just wanted to let you all know how the rheumatologist appt. went. She was great, took, time with me, answered my questions and didn't make me feel as though she was in a rush.

She said that she is almost 100% sure that my Raynauds is primary, no underlying cause, and the other problems are just what they are, what wonderful news!! She wanted to go ahead and do a complete ANA panel so we can get a baseline reading and keep track of that. She changed my blood pressure meds, turns out what they put me on will make the Raynauds worse and is part of what is making me tired all of the time. She wants me to start an excerise program, 5 minutes of stretching, 5 minutes of cardio and 5 minutes of yoga everyday (she did tell me not to feel bad if I couldn't keep up the first week especially with the yoga, my husband laughed out loud on that!!... LOL). I go back in 2 weeks for a follow-up, I feel much better about everything already!!

 

:D ,YOU ALL ARE THE BEST!!!~~~ :D

 

Tammy

Share this post


Link to post
Share on other sites

Terrific news, Tammy. Now you can concentrate on taking care of the Raynaud's -- primary or otherwise it is an enemy you want to keep close tabs on! She does sound like a great rheumatologist. You are very lucky to find one that gels with you so well. Doesn't sound like five minutes of yoga is very much, but I am sure she has good reasons for the advice she is giving. Better to keep after a small goal and achieve it than to set your heights too high and fail. Keep us posted on your progress.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Tammy,

This is great news! Sounds like you found a great rheumatologist. I like the exercise program she start you with. It looks very reasonable in getting you going which, as we all know, is the hardest part. Good luck with it.

 

Take care of that Raynaud's. Keep your whole body warm, not just the hands. Let us know how your tests turn out.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×