• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
scampie5

Liver Problems

6 posts in this topic

Hi as any one got any problem with their liver I have just had a letter back from my Rhemy saying that my blood result showed quite siqnificant deteriation and for me to have them done again asap any one else had this Lynn

Share this post


Link to post
Share on other sites

Hi Lynn,

I too have liver issues. My liver enzymes go up and down. I see a gastro doctor for this reason. We really havnt pinpointed the cause, and it doesn't seem to be progressing, so for now its just one of those things.

 

Are you suffering because of this? What does the doctor think is going on?


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

My liver enzymes go up and down too, but I'm also on methotrexate (we are assuming that is the culprit). As long as they come back down my rheumatologist doesn't get too worked up over it. We just have to keep a close eye on my bloodwork and do it more frequently. Hopefully, your's will come back down too. Take care and let us know how the next round of labs go.

Share this post


Link to post
Share on other sites

Hi Lynn,

For the past two years my liver was a mess! I was in a study and the study drug caused my lft's to go crazy. Shortly after the study I was to start chemo because I had to be taken off of the drug in the study and my lungs were deteriorating. I had a liver biospy and was classified as auto immune hepatitis. My chemo was started but I only lasted 5 months because my lft's rose to 544/325. The normal should be between 0 and 40. A year after I stopped the chemo my numbers are finally back to a "normal" for me, 120/60. Because of this my doctor does not want me to start on a ny new meds if possible. We have been putting off further treatments as long as I can take it. Please let us know what your next test results show. Drinking lots of fluids also helps flush out your system.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Gidget,

The study drug was Bosentan. Many people have taken it and it worked great for them. I guess my liver just didn't like it.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now