VEGAN

Endoscopy Results

4 posts in this topic

After my endoscopy today the doctor said I have "flat duodenal mucosa", gave me a picture & everything. I was suspecting celiac, but he said it's not likely because it's so uncommon (yet another doctor who doesn't seem to really know - it's much more common that people think, estimating around 1 in 300 with only 3% of people who have it being diagnosed - it's one of the most underestimated, least diagnosed diseases)

 

Anyway, I asked him if anything else besides celiac causes flat duodenal mucosa. He said nothing. What say you?

Share this post


Link to post
Share on other sites

Hi, VEGAN. I can see how it could be confusing after reading the site's page on Celiac and Gluten Sensitivity since several numbers were given depending on the strict definition. Hopefully you will find some useful information at that link that you can share with your doctors. I did a quick search on "flat duodenal mucosa" and I did see other causes, one in particular on Familial adenomatous polyposis (FAP). The Mayo article says it is "a genetic disorder that left undetected, almost always leads to colon cancer by the time a person reaches his or her 40s. Screening and genetic testing, however, can help detect this condition early in life and greatly reduce the chances that cancer will develop." The other things were in mixed diagnoses. Please let us know what you find out.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Vegan ,

 

I have to agree with the doctor. Gareth has bx's all the time to R/O celiac disease ....every time he has an endoscopy, basically. Have you had blood work done for CD...I think it's IgA autoantibodies? That is what they look for, though....flattened walls in the duodenal area.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

My IgA was low, but the GI doctor said the bloodwork done to test celiac was negative. But, every once in a while the results are wrong. I have all the symptoms of celiac, and now the flattened walls.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now