Nelly

My Endoscopy Results

7 posts in this topic

I had my endoscopy on Tuesday. They found gastritis & esophagitis. He said they took several biopsies and stretched my esophagus. I should get the biopsy results next week. Does this sound like the typical stuff? He said the most likely cause would be reflux. I've been on Prevacid (30mgs) for several months and was on Prilosec before that.

 

Also, and I don't mean to scare anyone, but I WOKE UP during the procedure. Not a foggy/unconscious wake up, I mean FULLY aware waking up in shear panic and gagging. :( The inside of my bottom lip is all purple/red and swollen. I'm not sure how I did that. I also have a place on my tongue. The nurse was telling me "It's okay sweetie, it's almost over." Then finally the doctor told her to give me more meds and I was out again. I'm still not able to eat solid food because my throat is raw and sore, I'm sure from fighting the tube. They gave me Versed & Darvacet. I was back awake as soon as I was wheeled into recovery and dressed and ready to leave within 15 minutes. I was hoping to get a good nap in, but I still couldn't get back to sleep! I am going to tell them to make note on my chart of what happened so next time they can give me more drugs!

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Nelly,

That does NOT sound like a very pleasant experience! I understand that they don't want to give you too much sedative, but they need to give you enough to keep you under. I came out of it right as they were pulling the scope out. That was unpleasant enough. I'm so sorry you had to experience that. I hope your mouth and esophagus heal quickly.

 

Here's a link to Mayo Clinic's page on gastritis. Apparently, if can be caused by reflux but also by a systemic autoimmune disease (like SSc). Esophagitis is a general term for any inflammation, irritation, or swelling of the esophagus. Like your doctor said, it too can be caused by reflux.

 

I've been on the same PPI regimen as you. I now take a Prevacid twice a day and a TUMS in the middle of the night. Still, if I eat within 3 hours of going to bed and slip down too far off my wedge pillows, I still get reflux. Nasty stuff! Also, if I eat too much (like I did Tuesday), I get reflux so bad I throw up. Thankfully, I'm smart enough not to overeat MOST of the time. You might talk to your doctor about the lifestyle changes necessary to deal with this.

 

Please let us know how your biopsies turn out.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hello Nelly,

Just as Janey said, it's pretty typical. I was diagnosed two years ago and my motility and esophagus are pretty well shot. They did find some abnormalities (Barrett's) with my biopsy but it's all about the control. Keep to eating small meals, never overload if you can help it, sleep with your pillows raised etc etc. The Barrett's hasn't gotten any worse in these two years and you'll find that you can control a great deal just by learning how, what and when to eat. I take Nexium and it has helped tons.

It's a huge pain. I won't sugar coat it, it's probably the worst part of having this disease. You can't go out for a late dinner with friends, forget about drinking or you'll be upchucking all night, and you'll find that you just can't tolerate certain foods even if they aren't the usual suspects. I can't eat ice cream, for instance, unless it's early in the day.

These are things you learn by trial and error. Good luck and ask your gastro doctor lots of questions.

And remember you aren't alone. Just remind them next time, bring on the drugs!!

Hugs, Mary


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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Nelly,

I have had many endoscopies. The first one I remember gagging. The rest of them I am totally wiped out. I had one last May and they were very concerned because they had trouble waking me up. That was a bit scary for my husband and son. The last one I had they were able to get me up. Definitely remind them to give you MORE MEDICINE!!!!!!!!

Take Care!

Nan

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Nelly,

 

I can totally sympathize. The same thing happened to me last week not only during my endoscopy but also during my colonoscopy! I decided then and there that I am never having either done again unless they put me totally under and that includes the prep for the colonoscopy. I had a horrible reaction to the prep stuff the doctor prescribed. Couldn't eat for 3 days after. Took me 6 days to feel somewhat "normal". ick ick ick.

I, too, hate this part of sclero! So sorry you went thru it as well.

 

xoxo emmie

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Nelly,

 

I have watermelon stomach and have to have an endoscopy every 2 months. The first couple of times I woke up during the procedure. NO FUN!! After that, they increased my Versed and Fentenyl, but I still could remember parts it. The last time I had an endoscopy (2 weeks ago) they gave me phenegren in addition to the Versed and Fentenyl, and they had a terrible time waking me up. I slept for 16 hours straight after I got home and I was really dopey the next day. I don't know which is worse, being awake or being overly sedated.

 

I woke up during my colonoscopy too. It was extremely painful!!

 

Best of luck,

 

Warmly,

April

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Hi Nelly, You are not alone. I'm another who woke up during my scope. It wasn't too bad though because my Dr. spayed my throat VERY WELL to numb the gag reflex. He told me that was the trick to keeping you comfortable. I actually enjoyed watching it on the monitor. They also found esophagitis and gastritis in me.

I also woke up during my first colonoscopy and like April found it to be very painful. I don't know if that was because of having colitis or not. I remember being up on my hands and knees and trying to leave. lol I told the Dr. this the second time and he must have given me more because I don't remember anything about that one.

 

Hugs, Piper

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