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Gizelle

Lung Nodule

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Gizelle, I started with one 5 mm nodule just over a year ago. Then 6 months ago anothe CT scan showed I had a cluster of nodules. I started to worry. I just had another CT and it says Stable appearance of pulmonary nodules without appreciable calcification. They are still there just not doing anything at the moment. The doctor whom read the chart thinks I have old granulomatous disease: TB or histoplasmosis. I have been tested for TB good in that respect. It also said I had splenic granulomas and right kidney granulomas noted. My specialist didn't seem worried. So, I will wait another 6 months and see if the go away on there own. Or Calcify or whatever it is that they are suppose to do. I am not going to worry for another 6 months I will just go along with whatever happens. I hope your nodule disapears. Sometimes it is the little things written in our reports that nag at us. Wishing you the best. Today - tomorrow - and forever. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Gizelle,

I also have a 4mm Nodule on my lung ( which showed up on a baseline test 6 months ago), my rheumatologist has referred me to see a Respiratory physician.

The reason he has referred me is that I also have SOB and have had severe pain in the lungs in the past.

 

It seems strange that a few of us have this, their was another thread about this a while back.

 

 

Sheryl, I have been exposed to TB in the past, the reason I know is that In the past I have worked in a number of hospitals. On one occasion I worked as a Clerk in the Day Surgery Unit and it was compulsory for me to have a Mantoux test on the forearm. My arm swelled up three times the size into a huge lump, which meant I tested positive to TB. All my chest xrays at the time was clear.

That was 11 years ago, I am now wondering whether my nodule is TB related.

It also makes me wonder if this exposure is what sent my immune system into action - causing the Scleroderma :unsure:

 

Take care

Celia

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Hi Gizelle,

 

I have a lung nodule, and many other abnormalities (fibrosis, granulomas, mediastinal cyst, etc.). But they followed all of it for several years and it turned out to be nothing at all. It seems that most of the time, what matters is how much it changes (or not) over a few years. With the fancy tests they are able to do now, they are able to pick up tiny changes a lot sooner, but it would be very helpful if they also told us that most things they find are not actually worrisome at all, even though they sure sound frightening at first glance.

 

See what your doctor recommends. Don't be surprised if they will just be monitoring it every six months or so, for a few years. And really try to mentally write it off as "nothing" so you don't waste any precious mental energy on it -- unless or until the doctor says it is time to do something about it. It's more than enough just dealing with scleroderma!

 

I am also TB positive, have been for many decades. We have a page on tuberculosis and scleroderma on the main website.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Gizelle,

 

I have several non calcified nodules in both lungs. I kept getting them after a bout of aspiration pneumonia. I also got pleural thickening and minor fibrosis. They followed with a ct every 3 to 4 months. They have not grown in almost 2 years. If they are small, they usually just watch by ct and dont do a biopsy. I do get short of breath with activity. I am not on any lung meds (except for occasional inhaler). I really wouldn't worry unless your doctor says to worry. My son also got them (he has mild juvenile dermatomyositis). They only did two ct's on him and they also did not change. They don't like to do ct's on kids if they dont have to. Hope this helps. Please e-mail me if you have any other questions.

 

EH


ANN

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