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Maddy07

Back From My Heart Cath

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Thanks to all who replied to my post yesterday. Of course the anticipation is always worse than the actual procedure. I mean I can think of 50 other things I'd rather go do lol, but it wasn't that bad. I'm home now and everything went smoothly and for that I'm thankful.

 

But, I do have pulmonary hypertension. Normal pressures are between 20 and 30 and mine was 80. I see my pulmonologist tomorrow and I look forward to TREATING this. We've been doing test after test for a long time so I guess that at least I have my answer and we can do something about it now.

 

I'm still wrapping my mind around the results. Sad, scared, glad to know finally, all at once. I also post over at phassociation.org and I know the wonderful people there will have good advice too.

 

Thanks for your support yesterday. I read it this morning before we left for the hospital and it was a nice way to start the day. :)

 

Maddy


Maddy

38 yr old mommy to 2 boys

Raynaud's, CREST diagnosed '96

Pulmonary Hypertension diagnosed Oct '07

GERD, Inefficient Esophageal Motility diagnosed Jan '09

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Hi Maddy ,

 

I guess it is a relief to find out and get a diagnosis but depressing at the same time. Sure hope you can get the proper treatment and start feeling better.

 

Take care, Everyone.

Margaret

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Hi maddy.

Sorry about your recent diagnosis. Hopefully the doctor will control it. What are the symptoms you were having to suspect Hypertension?

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Hi Maddy,

 

Thanks for letting us know how it went today. I am so sorry that you have PH but at least now you know what you are up against and can start a treatment plan.

 

Let us know how tomorrow goes.


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Maddy,
Thanks for letting us know how it went today. Sorry to hear about the diagnosis. As Sweet mentioned there are many new proven treatments out there. Here is a link to our PH treatment page. I'm taking Tracleer (Bosentan) and saw results within 6 months. I really hope you and the doctor find an effective treatment for you. Please keep us updated.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Maddy,

You made it through the testing... yay! The anticipation is always the worst. You have a diagnosis although I am sure you would have wanted them to say everything was normal, but now you know and hopefully you and your dr will find a treatment that will work for you.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Maddy,

 

I, too, am sorry about your diagnosis. But at least now you know what your fighting! Put the gloves on, and knock 'em out!!!!! At least now you can start a regemine to start feeling better.

 

Postive thoughts your way!


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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Hi Maddy,

 

Sure can understand your many feelings... knowing WHAT it is... a good thing, because now they know what to treat.

Take care and we appreciate your posting the results.

BTW, I'm glad it wasn't too hard on you.

 

Big Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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