Sharon Marie

Open Wounds On Finger Tips

6 posts in this topic

Hi Y'all I am a new member and I moved to a warmer climate (Corpus Christi Tx) due to my sclerderma. It has helped a lot although not removed the disease by no means. I was wondering if any of you can share with me topical creams or anything that can instantly take the pain away. I have 3 open wounds where the calcium deposits have tried to escape through my fingertips and it is so painful. I curretly use silvidine. Thanks~Sharon

Share this post


Link to post
Share on other sites

Hello Sharon Marie and welcome to the ISN Forums. We are glad you have found us and hope you will find it a great place for information and support. Ah, wouldn't it be nice to find something to instantly take away the pain. I don't have this particular problem but maybe others can share their advice. I am including our link on Calcinosis from the main site which may help. Did you mean Silvadene (Silver Sulfadiazine)? If so, this will not help with the pain at all. Was this prescribed by your doctor? I look forward to hearing more about you and your diagnosis as soon as you have had time to look around a bit.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Sharon Marie,

Welcome to the forums! I am glad you have found us here but I am sorry that it is because of scleroderma. Unfortunately there is no magic pill to instantly take the pain away. I would recommend seeing your dr to try to get something to get the blood moving. I have had great luck with viagra and others on here have used similar drugs to help them You can buy an over the counter neosporin with pain ointment that I use when it hurts. It doesn't take the pain away completely but it does help.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hey Sharon Marie,

The ladies are right - there's no instant cure. You can try warm, moist heat. I had 4 ulcers and Revatio, (which is the same thing as Viagra but they renamed it so the pharmacists don't go... why is a girl getting 30 pills of Viagra?) took the ulcers away. I'd ask about it. You could also try Nitro cream - it helps open up the blood vessels.

 

A hand therapist recommended Coban, the colored wrap you get after drawing blood or giving labs. If you cut it down to like 0.5" wide and really long it wraps better than a band aid and gives good protection. You could even put a bit of cotton under it with antibiotic cream. Just an idea...

 

I'm sorry I don't have any answers for pain. I know they hurt a lot. I think some people use lidocane or camphor based products. I've never tried them myself.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Thank you so much for your knowledge. I do use a nitro bid cream to help with blood flow but not as consistant as I should. I have been diagnosis at 25 years of age I am now 43. I am a Realtor and find it difficult to function in an everyday office job. The warrious temps going from in and then outside is hard. Did any of you have trouble obtaining ssdi services ( social security disability)? I look forward to creating a friendship with you all.

Sharon

Share this post


Link to post
Share on other sites

Hi Sharon,

 

Welcome to the sclero forums. I'm sorry to hear you are having problems with lesions. I hope some of the recommendations you received here will help you!

 

I look forward to knowing you better. :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now