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elizabethmarie

Scl-70 Test

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I've had two positive scl-70 tests - 5 months apart - in the last year and, like you, have no definitive clinical symptoms of anything. Odd migratory pains that come and go, no swelling or inflammation, no Raynaud's or GERD, etc. My rheumatologist estimates I have a 1% chance of developing scleroderma; my positive ANA and scl-70s only appeared after I nearly died of an allergic reaction to amoxicillin in fall 2007. So far, and knocking wood, I'm healthy!

 

I've seen other postings on this site where people with far more symptoms, but no clear skin manifestation or Raynaud's/capillary looping, have been told they have a 20% chance of their undifferentiated connective tissue disease turning into scleroderma, or, lupus, or Rheumatoid arthritis. You can search the forum postings under 'scl70' to see who else has posted on this issue. It's becoming clear to me that, as scl-70 positive individuals, there is far more variation in our overall clinical experience than most research summaries or literature reviews suggest. For example, it is possible to be healthy even with a positive ANA and scl-70. :)

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I'm late chiming in and welcoming our newcomers. Welcome, everybody on this thread that I haven't met before. :D

 

I don't think it can be stated often enough that antibodies don't 'make' a diagnosis. We've had a lot of members with positive ANA and/or Scl-70 results and no symptoms; with positive results and mild symptoms that could just as easily be attributed to something other than scleroderma; and negative results and a definite diagnosis (that's me - I've never tested positive for Scl-70). Did I cover all the permutations? I was trying to count on my fingers, but they've got cherry jam on them.

 

I know it is really rotten to feel that something is going on and not know what it is~ Been there, done that. I've even got the T-shirt. The one thing we do know is that stress is bad for everybody and we can ruin our enjoyment of life and every day's little pleasures by worrying about something that may never happen. The best advice I can give you is to get screened by an expert at some point. If there is no diagnosis forthcoming, then relax and enjoy some watchful waiting.

 

As a dear friend once told me, worrying is like buying insurance on a house you don't own.

 

Warmest regards,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Elizabeth,

 

Thank you for the post. I need to hear that because everything you read gives you poor prognosis. I posted on Thursday that I had gone to the Any Lab Test place and had them run another Scl-70 just to make me feel better emotionally. I have read this not a good tool to use or should not be.

 

Anyway, it made me feel better. I had my 4th negative over a 2 year period, however, my c-3 complement is at 83 normal being 90. I also ran a thyroid panel and was good.

 

Okay, I am on the way back up from my low.

 

I have always taken care of patients and been able to make things better for others. It has been so hard for me to be a patient.

 

Also, I have always been in control of what I eat, how much I exercise, and just doing the right thing. However, I am learning there are things that you can't control. It is just ironic that I have controlled my environment, but can't control my body's genetics. I am not sure if I said that right because I am not really good with words.

 

I am glad I have found this place and wish I had only done this a year sooner. I will only keep hoping that there will be a cure or a miracle will come.

 

I kept looking at this board, but would never post.

 

Thank you, Tonya

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