barefut

Approved! It Came!

18 posts in this topic

ITS HERE!!!

 

I hugged my Fed. Ex. man today. Then I came in, sat down and cried. Happy tears. Tears of relief.

 

3 months of Cellcept arrived today from Roche's Pateint Assistance Program.

 

When I think of the $4000+ finance charges, I have put onto my credit card over the past 20 months just for Celllcept I am sickened. I wish I had applied for the program with my very first prescription.

 

I urge low/fixed income families to apply for any kind of Rx assistance they can.

 

Even though I do have Rx coverage with my health insurance, it is insufficient and I haven't ever been able to afford the $200+ monthly out of pocket for my Cellcept.

 

I know there are so many others out there in my same boat.

 

When there isn't a generic option for your meds, start with the drug's manufacterer and go online to find out if they have a patient assistance program.

 

Don't wait like I did and go into debt that you cannot pay off.

 

It's a good day.

 

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Barefut, really glad that you have got the Cellcept. when my son developed renal failure whilst in Chicago, the Dr wanted to start him on Cellcept but first asked if we could afford it, if not he said he would give different treatment. Luckily we could as the insurance would pay but when he came back to the UK two months later , he got Cellcept and any other other medication he required for under £100 pounds a year (under $200) - the cost of the annual pre-paid prescription card. I often think that people in the UK don't know how lucky they are not having to worry about the cost of their medication.

Lizzie

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Hi Barefut ,

 

Congratulations!!! You have had so many problems lately.....you deserve to party with this present.

 

Take care, Everyone.

Margaret

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Congratulations, Barefut! I'm coing in late and everyone's already said it all! I'm really happy for you!!

 

Mary in Texas

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I have been watching for the announcement since your first teaser post, then seemed to have missed posting when it came. This is a very positive development, indeed. How is it you learned about the program?

 

Yes, I guess it would give me some pause to have a bottle of pills worth a couple of grand. Just curious, how do you and others keep your medications safe from little hands?


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I keep a weeks supply in a weekly container on my kitchen counter. When guests come for a visit or there are little ones around I put them on the second shelf in my kitchen cabinet. All the rest are in a brief case in my bedroom closet. Since I get refills for 3 months at a time, I needed something big to keep mine in. I set it on my bed and take out what I need at any given time. Usually, just once a week. This also keeps visitors from looking in medicine cabinets and seeing all the prescriptions and over the counter meds that I take. Nothing disapears when aquaintances are here with others at some of our gatherings.

Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Jefa,

 

I don't remember who, but someone told me that some drug manufacturers have these patient assistant programs where you can get free or reduced cost medications. I went to Roche's website and all the information I needed was there. Now I am singing it to the world. I am so happy to be able to pass on this information to people.

 

I keep my meds on a high shelf in the kitchen. Luckily, neither of my kids have ever shown an interest in getting into anything that is not safe for them. When they were little, I had safety latches on cabinets and drawers but they stayed out of stuff anyway. I have always wondered why that was....maybe since I gave them their own bottom drawer in the kitchen and otherwise let them have run of the house...?

 

If/when I get licensed for daycare I will be required to keep all meds in a locked box.

 

B


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I am sooo happy for you! I remember when I got the IVIG approved years ago & the hope that soared right along with the news!!!! Healing is soooo much easier when you have the "happy things" running around in your brain and worry has been set aside!!!! HOORRRRAAAAYYYYY for you!


Soft hugs your way,

 

Michele

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