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lizzie

Curling Fingers

13 posts in this topic

Was just reading the post from Vee and Barefut that the small mouth thing just snuck up on them.It started me wondering how it is that one day you think things look normal ( well normal for me that is - not necessarly normal by other peoples standards!) and then just the next they don't. Has anyone else noticed that or have an explanation?

Today am convinced that my fingers are begining to curl in a way that they weren't yesterday but not sure whether it is just my imagination. Have been driving my family mad getting trying to get them to hold out their hands to see what angle their fingers naturally lie at but hasn't really help answer my question! Have decided that to be on the safe side will add hand/finger stretches to the regime along with the face ones. As I'm always short of time thought I would try doing finger stretches at the same time as face exercises, but was like trying o that that party trick of patting your head and rubbing your tummy at the same time! Ah well. will just add another 5 minutes to the ever lengthing body maintanence time.

Lizzie

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Hi Lizzie!

 

I know what you mean with the fingers curling. I went through that whole thing too - comparing my hands to everyone elses, even my doctors! I do obviously have some curling with both of my index fingers, I stretch as well. Funny though just 2 weeks ago I noticed the toe next to the great toe on both of my feet are curling inward......hmmmm I've always thought I had cute feet lol guess that's changing too!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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both of my hands well fingers are going inside or inward too.

but not like someone who has skin tightening. It is different I guess. it has been going on for a while. I also deal with a small mouth and do my exercises for that too, Sam


Sam

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Lizzie,

 

I know it sounds strange to just one day look in the mirror and say, "Yea, I DO have a small mouth!"

 

I did notice changes in my mouth but had no idea it was anything to do with anything before my diagnosis. I had a smallish mouth to begin with. Dentist was always telling me to "open". I was like "I AM open!"

 

When my doctor asked me to open my mouth as wide as I could and told me that she could tell when I was talking that I didn't open my mouth very wide, that was when I started really paying attention to it and comparing recent photos to earlier ones of myself and then I could really notice it. Since my diagnosis it has gotten worse too, so now I am really self-conscience about it. It's hard to look in the mirror sometimes.

 

I went through the same thing with my hands too. Since the changes are so gradual they go unnoticed until we go comparing ourselves to others. I went to hand therapy for a few weeks after I noticed that my range of motion had decreased. I made my therapist compare her hands to mine. You lose track of what is normal.

 

I really, really wanted to nip any hand curling in the bud and that's why I went to hand therapy. I bought a wax bath and learned some great stretches and massgaes.

 

My hand therapist showed me her supply catalog and I ordered myself a battery powered hand massager to help keep my skin supple and my joints flexible.

 

I think curling becomes a problem when the skin on the backs of hands becomes tight and immobile. Thankfully my skin has stayed pretty moveable on the backs of my hands. No curling - yet.

 

I'm sure there are others less fortunate who can fill you in on how/when their curling started. I met a woman in my town with curled hands from sclero. I was amazed at what she could still do, although she did say that her basketball career was over - I believe she was joking - even though she IS tall enough to be a hoops star. :P

 

Well, enough rambling...

 

Take Care,

Love,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Lizzie,

 

I had very skinny lips to start with, so when I started getting those purse lines, they were not very deep yet, so I attributed it to my age. Then like Barefut, my dentist said that I had a small mouth and was difficult gettilng to my back teeth. It seemed like after that it went very quickly over the next year that the lines got deeper. I started doing mouth stretches immediately after that, should have started them sooner. But it seems like maybe they are not as bad as last year. But then again, maybe that's my imagination too!! :P I try not to spend too much time in front of the mirror, I'll just find something else that I don't like, such as how crooked my nose really is since the skin on my face got tighter. And my hairline is further back, but I think that one can be chalked up to age..........

Shall I go on!!!? And don't get me started with what's below my head! :lol:

 

Have a fantastic day!


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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Hi there,

I have a similar problem, with the joints in my fingers. They are always so stiff and I tend to hold them curled in for comfort. So I guess that this would be more of an arthritis issue than a skin tightening.

 

Lizzie,

I hope that your hand excercises start to work for you!


*WestCoast*

 

********

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I've been doing stretching excercises for my hands since diag. in Jan. '07 but they are doin' their thing and continuing to curl. I really noticed it when I tried to put my hands together to do the whole 'here's the church, here's the steeple' thing.' My fingers do not lie against each other. I can still do the Vulcan greeting "live long and prosper' albeit a bit curved and will get really upset when that goes. HaHa.

 

Arms are crooked, mouth is small (husband would argue that!), skin is tight and joints hurt, and had ugly feet to begin with. Guess it could always be worse. I would really like to hear what everyone does for their hands as far as treatment for skin tightening and special exercises (sp?). I try to lay them flat, but boy oh boy do they hurt when returning to normal. Oh- did I mention my hair is falling out like crazy.

 

In all sincerity, I don't look in the mirror too much, don't look at old pictures of myself (just last years) and keep on hoping that something will slow down this bullet train.

 

Hugs to all -TJ

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Dear TJ

Think you have just answered my question about how do I know if my hands are curling - I can use your heres the church heres the steeple test as a benchmark against which to measure change!

 

on a more serious note , you seem to be having a bad time at the moment, so sending postive thoughts your way.

 

Lizzie

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hey I have noticed also my fingers dont lie flat any more and they look like sausages haha! they seem to have fat lumps where my fingers join to my hands hmmmm! i also have small neat cute feet but lately on my right foot I noticed my little toe seems to have a lump on it where that joins to my foot and looks like my little toe is leaning more to the side (strange) as for my mouth naaa still as big as ever haha! tho I do think my lips are thinner than when I was younger is this just old age? hope you guys have a great day jaxsx :rolleyes:


live life for today and not for tomorrow

 

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What exercises do you do for your small mouths then? Just like open it as wide as possible and then purse the lips?


Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

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Hi B,

I do facial exercises developed by a physio for people with scleroderma. One of them involves stretching the mouth with your thumbs, sounds wierd but think it actually works! Also has exercises for lips , hands and arms and range of motion.

I will send you an email with details of where you can find them.

How are you doing these days?

 

Lizzie

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Hi Jax, My baby fingers are doing the same as your baby toes and are bending outward. My hands are pulling in but from the palm side being so hard. Anyone else have this? As I'm not diagnosed I'm wondering if this is truly sclero or if I have something else going on. The skin on the back of my hands is still quite moveable but it's just the palm side that's so hard. Sometimes my hands almost feel normal to me, really weird. I find I can't spread my fingers apart either and I still have quite a bit of joint inflammation on the large knuckles that I've had for the past five years. I wonder how much hardening it will take to be diagnosed. :rolleyes:

Hugs, Piper

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