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truman

Great News

13 posts in this topic

I went to the new rheumatologist today and this one did an actual physical examination. He also agrees, that it is limited to the arm and possibly both ankles but no further involvement. He is prescribing a low dose of a cancer medication which he says will, in time, reverse the damage of tightness on the right arm and soften the skin. He has also prescribed a blood thinner for the Raynauds..........a light at the end of the tunnel. Worse part of today was that my laptop crashed and I had a new hard drive put in. When returned, I cannot access the internet for remote access to my office to work, because my son, as administrator of our system, has the password. Now what? He'll never email the password becaused he fled in June.


Tru

 

It is what it is...........

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Tru,

It's good that you have found a good rheumatologist! That's so important. What's the cancer drug and blood thinner that he prescribed? Many of the immunosuppressants that are used for autoimmune are cancer drugs but at much lower dosage. I was on methotrexate and it did soften the skin on my hands (the only hardening I've had). I hope whatever drug you take that it works really well for you.

 

Hope our computer problems get solved. What a bummer!

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Tru,

 

I am really happy for you

I know you can do it.

Just focus on one goal to take care of yourself..

 

 

Kamlesh


Kind regards,

 

Kamlesh

 

 

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Tru,

I'm so glad you have found a doctor who seems to know something about sclero! I hope the drugs you've started really help you get better.

How is your toe? What did the doctor say about the toe?

 

Mary in Texas

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I'm going to a wound care center Monday. I made the appointment on my own. My doctor seems to think it unnecessary, and the rheumatologist had no opinion stated, but I want this to be done and over with.

 

I am planned to go back to work week after next, and I want to be able to "walk" the hallways instead of "hobbling".


Tru

 

It is what it is...........

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Tru,

I am so glad you have found a new doctor and you are happy. Please let us know what happens at the wound clinic.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Janey:

 

The cancer drug is Methotrexate and the blood thinner is Plavix. The only complaint is that they tape these mini warning labels over the prescription bottle, that even with glasses, I can't read. I'm just going on a wing that those are just "standard" warnings. <_<


Tru

 

It is what it is...........

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Mary:

 

I'm going to the wound care center on Monday. I took it upon myself to get this done once and for all. I will let you know Monday, the results.


Tru

 

It is what it is...........

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Thank you Lisa and Sweet.........

 

I got a card from my office today with all the signatures and good wishes next to each. I know these are generally a standard practice in offices, but it did indeed bring me to tears and I took those signatures and wishes truly to heart. It was so needed today, even on the upswing. It teaches me that in the future, I will take complete notice of situations of people I know and people I meet, and will view and treat people based not only who they are, but what they may need. Not that I haven't in the past, but it's totally reinforced for the future.


Tru

 

It is what it is...........

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Hi, Tru. Since you said you can't read the warning labels, I have included links which should help. Anyone taking methotrexate should read through all of the information carefully.

 

METHOTREXATE

 

PLAVIX (Clopidogrel)


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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