whirlway

Shingles Update

7 posts in this topic

I have been dealing with shingles for over a month now. I don't have any more sores or scabs, so that is good. I still have a great deal of pain

and itching on my forehead and scalp, but the worst part of this deal was when the shingles went into my left eye. That is the reason I have not been very active on the forum for a while. I can't see very well and the light really hurts my eye, so I have to wear dark glasses in order to do anything on my 'puter. I have been through 4 different types of drops, I am still taking two of them, with hopes that my vision will return. I have been to the optho guy every week for a month now. He keeps telling me that my vision will come back, but may take some time.

The itching is driving me crazy. My primary care physician finally gave me some anti-itching pills, but I can only take them at night, as they make me pass out.

I had to stop taking cellcept, because my rheumatologist said I wouldn't heal as fast, so of course he increased my prednisone to 10 mg per day. Hopefully I will be able to start weaning down to 5 pretty soon.

Sorry this is so depressing, but that is pretty much the way my life has been the past month. If you haven't asked your dr about the shingles vaccine, please do so. I really don't want anyone else to have to suffer from the shingles.

~whirlway

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Oh goodness whirlway that sounds miserable.

 

I was just sitting in the doctors office 2 weeks ago reading the poster advertising the vaccine, wondering if I should get it. I've had chickenpox and did have shingles once in my early 20's. I need to read up on it more to see if I'm a good candidate for the vaccine. I don't think my bout lasted near as long as yours did, but I do remember how painful it was!!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I can really understand where you're coming from! It's been 30 years now, but my husband had shingles that were called - in the optic nerve ! His face/head swelled out about 1/2 inch, but only 1/4 of his face/head. He's blind in one eye & that's the eye the shingles didn't swell shut! It was a horrible time. We were so worried that it would affect his good eye - but it didn't! He also said how much it hurt & the pain continued for a good long while. That was way before a vaccine or any of the new drugs out to help rid/reduce the virus. It took over 10 weeks before he could go back to work. I guess I'm just really "feeling your pain" . Feels like yesterday when I'm reminded!

 

Hope you're feeling better today!


Soft hugs your way,

 

Michele

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Whirlway,

 

Sorry you had to go through so much.

 

I have first hand experience with Shingles almost two years ago and I still have scars and pain in left arm from Shingles.

If I would have known about Shingles vaccination, I would have definitely taken it. I am going to ask my doctor next time what are the chances of getting shingles second time. Even if there is a slight possibility, I am going to take the vaccination.


Kind regards,

 

Kamlesh

 

 

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This is the first I've heard about a shingles vaccination. I had shingles by the left part of my mouth about 2 years ago. The other symptoms that I struggled with started after that and they think that this additiona autoimmune disease was the start of my getting sclero and sjogren's and raynauds and everything else.

 

Should I still get this vaccination? I have blood work on Monday and if so I'll plan on asking my general practitioner for it when I'm in for the blood work. I certainly don't want to have to go thru shingles again and thought that I had them that I was done with that and couldn't get them again.

 

Thanks.

 

Peggy

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Peggy,

If you are seeing your doctor ask for the vaccine. You can get shingles over and over again. Each time they develop they get worse. My dad just got his shot last week. He had shingles last year over 70 percent of his body. He never wants to get them again. I am going to get my shingles shot hopefully in the next month or two. Whenever I make an apointment. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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