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Tammy

Combatting Fatigue

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I have been fighting fatigue for several months now, lately it has gotten very bad! It is all that I can do to drag myself out of bed for work in the mornings and the weekends I sleep until 11 or 12 and have to force myself to get up! I changed my primary care physician last week, I decided that I needed a dr that was going to be able to help me keep all this stuff together and in perspective (I also have that much needed appt. with the endocrinologist thanks to the new dr.). I asked her about the constant tiredness, she wants me to ask the endo doctor about it but she suggested that I take a B complex vitamin in the meantime. I have been taking it for just over a week now but haven't noticed a difference, maybe I just haven't given it enough time yet but I am so exhausted all the time that I am growing desperate. What have any of you tried and what works for you? I would really appreciate any advice!!!

 

Thanks ~~Tammy~~

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Sorry to hear you are feelin so bad at the moment Tammy, I know what you mean about being tired all the time. Do you think it is time that you had a break from work if at all possible to try & recharge your batteries a little.

I'm not working at the moment & know that I would not cope with full time teaching at present, it's one of those jobs where you cannot do anything other than give it 100%.

 

I have to admit to giving in to short naps during the day when feeling really tired & other than trying to have a healthy balanced diet I don't know what elese to do .

 

Take care

 

Jensue

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Hey Tammie,

I know fatigue can be rough. When I was working I'd fall asleep at my desk without knowing it even though I'd gotten 12-14 hours of sleep the night before. Have you looked into FMLA? It allows you to take time off intermittently to care for yourself. Recharging, like Jensue said might be a good idea.

 

Light exercise may help with fatigue. Also, I've been getting B-vit complex shots every two weeks and now every month. My rheumatologist said it was alright since the body disposes of any thing extra. My last shot got me out of some really, really bad fatigue. My muscles were so exhausted. It felt like I had exerted every muscle in my body without doing anything. The day after the shot I was buzzing around... buzz buzz buzz

 

Take it easy,

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi Tammy, you have my sympathy, I know the feeling well. As well as being very debilitating it is very frustrating not being able to do the things you want/need to do and not helped by the fact that to other people you look fine when in fact you feel like death warmed up. What I have found is that if I can break through the fatigue barrier and go for walk or do some other activity I feel better - although its sometimes too exahusting to contemplate. Other than that my only advice is to check the side effects of medications to see if they cause fatigue, don't do unecessary stuff round the house, get someone else to do the grocery shopping or shop online and get it delivered and nap when you can.

Lizzie

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I too understand how you're feeling. I'm coping with the same issues myself! We changed drugs in hopes that those side effects would lessen the effects, but it really didn't help. I never found much help with vitamins when I was taking them, but now might be a good time to re-try - thanks for the reminder! I have used very low dose amphtetamines - litterally 1/4 of the lowest recommended dose - and it does help, except when it stops working, then I am extremly fatigued and have to just sit. It's a 50/50 proposition. I can say that it's good to be able to work & concentrate, but the down side is pretty miserable when it wears off. But, it may be worth a try for you. I work at Starbucks and really love working & the customers who have given me new life. This week I'll see a new rheumatologist and see what he thinks. My general practitioner wants me to start Embrel or Cellcept. He says that this type of drug can give you your life back, but it's a big committment & expensive. But I'm willing to investigate any avenue that's offered. I'll let you know what happens. Remember to take a few minutes during the day to just sit, maybe by a sunny window and just let your mind wander. Amazing how much help that can be too!


Soft hugs your way,

 

Michele

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Fatique is one of my main things that doesn't ever go away...

 

I use to take folic acid but really didn't know a difference, I know when I am more tired than usual, I have an infection. If I am tired I take my nap. Wake up when I wake up.


Sam

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Hi Tammy,

This is a good post, but I'm sorry you're struggling with fatigue. When a person has to work, it's difficult trying to find the time to rest when it's needed. I'm struggling with the fatigue too, but I'm not working anymore... outside the home, that is. I just don't have the physical ability to be able to do that any longer.

Though I'm only taking B12 right now, I find it doesn't help me nearly as well as does the B50. Like you, I require alot of sleep, even though my hubby teases me about it. Only 5 months ago, I was working with him, which required that I be up at 5 am. Thankfully, we went to 3-day weeks 5 years ago, so that helped. However, even with the cutting back on days, I had trouble with the schedule. When pushing myself to do things, I've also found that that takes so much energy too.

I really appreciate this post, in that I've been having extreme pain in my muscles too, so I need to look to resolve this.

 

I hope you can find a solution for your fatigue, as well as others who are having trouble with it.

 

Big Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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tammy, I too, know exactly how you feel! It's so frustrating. I am not teaching full time either and some days wish I could and others, I think "wow, no way can I do this any more"...I'm substituting and glad to be able to walk away at the end of the day, although we are suffering financially.

 

What I want to know is WHY are we all so tired? It's almost like a curtain comes down on me and BOOM, I'm done! Some evenings, I fall asleep watching tv with the family, then I can wake up and function again after a little nap. I have a real issue with vitamins because I don't have a colon. Any suggestions?

karen

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Hi Tammy, You have my sympathy. I would say that this is my worst problem lately. I don't work outside of the home and when I do something in the house I find I have to take frequent breaks. I can't vacuum one whole floor anymore without resting halfway through. When I was raking leaves for about 5 minutes the other day I got so tired that I went in and lay down on the recliner. I went dead out to sleep for about half an hour. This is not normal and I don't know the answer. Some days I think, I could go back to work and other days I know that I can't. I've found that I have to rest when my body asks for it or I'm no good for anything.

Hugs, Piper

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Tammy,

 

I can relate. Taking B vitamins does in fact help, stick with them. Are you on plaquenil? That made a world of difference for me. Also taking Fish Oil helps as well, in addition to a good multi-vit. How is your diet? Increased protein can really help too.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Tammy I also have the same problem. I had to retire from my job. I find the only thing that helps is just plain SLEEP and lots of it.

Good luck, Gizelle

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hi tammy. i agree with sweet (hey sweet)...plaquenil saved me. when I'm tired, i lie down and put my feet up...higher than the level of my heart. when I'm having good days, i try to get moving in some way to strengthen my muscles. i stretch...a lot. i've done yoga for about ten years or so and it gives me so much more strength and flexibility.

 

hang in there and respect your body when it speaks to you. when you're tired, please rest.

 

hugs to you and chin up!!!

sharon

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Hi Tammy ,

 

I just commented to Nan on another post about Gareth's fatigue. The Plaquenil seems to be doing so well for the vocal cords, lungs, esophagus..... but the fatigue just will not let up. He came home from school and was so excited about watching the Steelers tonight on TV and, yet, he couldn't even stay wake for the Nightly News to finish at 7:00. He's in bed by 7:00 nightly and sleeps till 6:30 am.....a 19 years old teenager!!! Some social life!!! I sure wish there was some medication to give for fatigue.....there is medication for everything else!!!

 

Take care, Everyone.

Margaret

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Fatigue seems to be one symptom that is consistent with us. It makes you wonder what our bodies are fighting or going through to be so tired. I take vitamins and supplements which seem to help somewhat, but I can lay down at any hour and go to sleep, no problem. Sometimes Im a walking zombie. I have not yet been diagnosed with slero, but have been diagnosed with fibromyalgia and endometriosis.

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I was reading my husband's running magazine and there was an article about foods that fight fatigue... Iron. Lean cuts of beef, dark poultry, clams, oysters, fortified cereals, green peas and broccoli; kidney, black and garbanzo beans. It says that animal sources are the easiest way to meet the recommended 8-11 milligrams/day for men and 18 milligrams/day for women. It also says vit C increases absorption of iron; drinking coffee or tea with meal can block it.

 

Something to think about...

 

I eat very little meat but love beans and lentils and chick peas and chocolate...

but not all together.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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