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Tammy

Combatting Fatigue

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WOW, what a big issue this seems to be! I really appreciate the good tips and advice. It is interesting to see what has helped and worked for some and done absolutely nothing for others. I talked to my pharmacist today about the absorbtion of the oral B-complex as opposed to the injection form, I know that the injection will provide better absorbtion and be more effective so I think that I my try that. I can handle a couple of days of being sore better than I can the constant fatigue!

 

In reply to some of the posts: Time off of work would be wonderful and my employer does provide FMLA, in fact I already have an intermintent leave but it has nothing to do with this, a whole different dr. and issue there. My job is very stressful, I am the lead pharmacy tech and my boss can barely make it through lunch without me there (lol). If I take much more time off he will probably flip his lid!! The financial impact would cause even more stress at the present time. We are already starting to fall behind just from days off for dr visits and such and there are a lot more to come. As wonderful as it would be, it is just not possible at this time.

 

I am taking several medications now: Papavarine, propranolol, norvasc, omeprazole, furosemide, neurontin, B50, and some prn meds, all but the vitamin and albuterol cause drowsiness (yeah!). If the injection doesn't seem to help I will ask about palquenil.

 

My eating habits are terrible, have been for years, and I know that can cause some of this problem as well. I never eat breakfast and very seldom eat lunch, my stomach problems make it difficult to do so. Lately even dinner is hit and miss, working all day and especially the increased ankle swelling takes it's toll, I am on my feet from 9 am to 6 pm with an hour lunch, by the time I get off I just want to come home, put my feet up and rest. Cereal has been the dinner choice as of late or just skipping it entirely.

 

I am really hoping that the endocrinologist will be able to help with this, it is becoming depressing and I am becoming a hermit. :(

 

Again, thanks for all the replies!!

 

Rest and Hugs to you all!! ~~Tammy~~

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Dearest Tammy,

Don't become a hermit. Hermits don't have internet - we'd miss you.

I should tell you my Vit-B Complex Shots are the most painful of all the labs, injections and IVs I get, but they're completely worth it. I get mine at the natural food store and no, they don't just pop you in the veggie section. It's all quite discreet.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Tammy it is important to eat well because you will feel more tired without sufficient energy foods. I found myself very much like you not having the energy or time to cook a proper meal so my hubby started cooking for us(I know I'm lucky that way) and since then have been doing more cooking while being off on sick. But it did take a long time before I had built up enough energy to cook.

Can you not eat some fruit during the day to at liest give you some vitimins, & try eating just a little but more often.

 

Do take care of yourself.

 

Jensue

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Tammy,

I don't see how you handle a work schedule/ job like that. I can't imagine standing on my feet all day. No wonder you're fatigued!!!!! Since you do have such rotten, I mean ROTTEN eating habits :) I have a suggestion. How about one of those OTC dietary supplements that come in powder or liquid form? I've started using a powder that has 25% RDA of vitamins per serving. I mix it with some soy milk in the morning and again in the afternoon. It has helped me a lot! I still eat the same so this is what I'm using as my vitamins. I get the jitters when I take a multivitamin in pill form. You can also buy it premixed so all you have to do is drink it, no prep needed.

 

I sure hope you find something Darlin'. With your health and work schedule, you need something.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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hi again tammy. i just saw the meds you take. i know from experience that propranolol can contribute to a whopping amount of "all-over" fatigue. when I was on it I could barely get off the couch. and this was years ago before I had any of this other stuff. i had to switch to atenolol which acts only on the heart. a significant improvement.

 

also, the furosemide...are you taking a potassium supplement? and the neurontin can kick you off your feet too. just thought I'd mention all this, if you didn't already know.

 

take good care!!

sharon

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Hi Tammy and all who have posted since I last did.

Lots of great suggestions for all of us who are having the issues described.

 

I sure like what Janey has suggested that works for her. I'm going to try that too, Janey :rolleyes:

 

I don't know how you do it, being on your feet... a grueling schedule for most, but explains alot!

 

You are a real trooper, Tammy... is there any way you could sit during part of your work day? I realize the demand there must be on all of you working in the pharmacy.

 

I agree with the suggestion by Jensue, Janey and others who suggested you try eating a little bit several times a day. It's so much easier on the digestion.

(I should practice the same :P )

 

Take care, Tammy et al!

Special Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Boy can I relate. I have just spent the entire day on the couch having accomplished nothing but had no choice. I have in the last 3 days fallen asleep while I was talking with people - talk about embarrassing! I have decided I can't fight it though - which is the hardest thing for me to do as I am usually such a work horse and a pefectionist on top of it.

 

Everything I'm reading though tells me that it's the sclero disease. What I want to know is this the way it's going to be? I can't imagine having this disease for these poor people that have small children. My husband has been very good in realizing that I can't do much and doesn't require big meals and is OK with cereal and toast if necessary.

 

So you and I just need to realize that we have to rest when our body is telling us that's what it needs and cherish the times when we feel good.

 

Stay warm!

 

Peggy

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I wanted to wait a while before I posted another reply to this topic because I have started a B-complex injection and wanted to give it a bit to see if it helped. I have been using 2cc IM weekly for just over a month now and am still taking an oral B50 complex daily...I am still exhausted!! How often do you guys use the injection?

 

 

Thanks & Hugs

Tammy

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I sometimes feel like I'm drugged, I drop off so easily, while watching TV, reading, sometimes while driving I have to pull over. I started taking a sublingual B-12 and it's helped a bit.

 

Another scary thought, but everyone should keep it in mind is coronary artery disease. For women especially, one of the first symptoms of a blockage is severe tiredness. The month before my first heart attack, I slept like crazy. It happened again and again. (I've had three and the doctors think my arteries are compromised in part because of the scleroderma) My cholesterol is low, I'm on plavix and aspirin and yet I get blockages. Just be aware is what I'm saying, everyone was shocked that my problem was so serious.

 

Karen

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Hi Tammy,

It is not uncommon to have some fatigue with Scleroderma. I did mention to primary physicians during the last visit. He went over all the blood tests to find any deficiencies and he found very low level of iron. He asked me to start over the counter iron tables over 300mg a day and in case I am constipated due to iron, he prescribed medications to relieve constipation. I am glad other necessary elements such as B12, Folic acid are within normal range. Still my CBC stays below 3.5. So I have some more work to do.


Kind regards,

 

Kamlesh

 

 

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Karen, that IS very important information and yet scary indeed :o !

 

Hopefully, doctors will better recognize the signs, as well as the ladies themselves so these attacks can be prevented.

 

Quite awhuile back, I posted about a friend of mine who had been doctoring becaus e of pain she had been having. They figured it was Carpal Tunnel! Two weeks after they had pretty much given up, she had a heart attack and died. It was very heart-breaking, as she was so proactive, where taking care of herself was concerned.

 

Appreciate your post... Take care of yourself.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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