tmgilbertpt Posted November 20, 2007 I just recently started treatment with Tracleer, drug used for pulmonary hypertension. So far my side effects have been loss of appetite and pretty bad nasuea. Right now I am on 62.5 mg twice a day. To be on this dosage x 1month and then increasee to 125 mg 2x/day. I was wondering if anyone out there is on this medicine also and how they are tolerting it? And how long did it take before you felt better. Thanks, Tammy Quote Share this post Link to post Share on other sites
CraigR Posted November 20, 2007 I've been on Tracleer for over a year and never had any side effects. I'm at the complete dose of 125 mg per day. Just be sure and get your monthly liver test. Craig Quote Share this post Link to post Share on other sites
JohnLCanuck Posted November 20, 2007 I've been on Tracleer for almost 4 years now & I never had any side effects. Better yet I call it my miracle drug. I can walk further & faster & the constant pain in my finger tips is almost non-existant. I also take "tylenol arthritis" so my liver test is important & is done every 3 months now. No problemo! However, we may all have Sclero but diff meds for everyone & tolerances all different as well. Good luck John L Quote John L Share this post Link to post Share on other sites
Shelley Ensz Posted November 21, 2007 Hi Tammy,Actelion has a free patient support program, called SureSteps, for U.S. patients. You can get your questions answered by a nurse counselor. The website address for SureSteps is http://www.tracleer.com/sure-steps/ and it is listed on our main site at:Tracleer/Bosentan Clinical Trials Quote Warm Hugs, Shelley Ensz Founder and President International Scleroderma Network (ISN) Hotline and Donations: 1-800-564-7099 The most important thing in the world to know about scleroderma is sclero.org. Share this post Link to post Share on other sites
janey Posted November 21, 2007 Tammy, I've been on Tracleer for a year. Six months at 125 mg twice a day, then reduce to 62.5 mg twice a day last April. No side effects and my liver results are normal. My PA pressure has dropped and I don't get as SOB. The extra benefit has been that it's really helped relieve my Raynaud's as well. Good luck to you! Big Hugs, Quote Janey Willis ISN Support Specialist (Retired) ISN Assistant Webmaster (Retired) ISN News Director (Retired) ISN Technical Writer for Training Manuals International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Sam Posted November 21, 2007 Shelly thanks for a great link. Sam Quote Sam Share this post Link to post Share on other sites
tmgilbertpt Posted November 21, 2007 Are any of you guys also taking Coumadin with the Tracleer? I was speaking with one of my patients who is on Coumadin and he described his stomach symptoms actually like what I have and his started with the Coumadin. So I am wondering if maybe this is it? Thanks for responding..good to hear from those who have had postive effects from the drug. Tammy Quote Share this post Link to post Share on other sites
CraigR Posted November 23, 2007 I take Coumadin along with Tracleer (and Neurontin [peripheral neuropathy], Prazosin [minipress], Evoxac [sjogren's] and another pain reliever for peripheral neuropathy. No stomach problems or other side effects. I take the Coumadin at night before bed. Craig Quote Share this post Link to post Share on other sites
janey Posted November 23, 2007 Tammy, I also take coumadin but have no side effects that I know of. I take it right after I eat my evening meal. Big Hugs, Janey Quote Janey Willis ISN Support Specialist (Retired) ISN Assistant Webmaster (Retired) ISN News Director (Retired) ISN Technical Writer for Training Manuals International Scleroderma Network (ISN) Share this post Link to post Share on other sites
