Jump to content
Sclero Forums

Lump In The Throat

Recommended Posts

I haven't posted anything about myself for quite a while so please bear with me!

I have swallowing problems, so bad in fact that I feed via a PEGJ. It's quite a while before I visit my rheumatologist given the fact that I've only recently had my 6 monthly review. Why, oh why! do problems arise after the appointment -- do you find this also?

I have a permanent lump in my throat. It started during a recent cold-- went away then came back. It's not sore all the time but it comes and goes like my throat is shrinking. I wondered if it could be tonsilitis but then realised that it would be there all the time and not just now and then. It hurts when I yawn and I seem to be doing quite a lot of that lately though I don't know why.

No use asking my general practitioner -- she's as much use as a chocolate fireguard and she'll only say " What can I do?" Yep she's that impressive and sympathetic.

Do you think I have a case to go back to my rheumatologist? Or am I just being silly and it's nothing but a sore throat caused by a virus.

I guess asking you guys will provide me with some amunition, maybe one or two of you have a similar problem?


Best wishes

Barbs xxx

Share this post

Link to post
Share on other sites

Hi Barbara,

I haven't experinced a problem like this myself, but I have had problems arise between follow-ups. The rheumatology department of the hospital I attend has a helpline , so I can raise concerns with my Rheumatologist via that, but even if that was not available I would have contacted his secretary or the clinic. I think anything that is causing you problems and concern is a good enough reason for contacting your rheumatologist. It may however be worth making an appointment with your general practitioner, hopeless and unsympathtic as she is she is , she is probably capable of looking at your throat to see if there is any visible reason for the problem. If she can't find a reason, you would then have even more justification to seek the advice of your rheumatologist.

Hope you get the problem sorted


Share this post

Link to post
Share on other sites

Hi Barbs,


I agree with Lizzie but am so sorry you have to deal wth a general practitioner like that. doctors with her bedside manner, or lack thereof, discourage patients from going in when they're on the fence about it and it could lead to something serious if left.


I have a lump in my throat right now. Happens almost everytime I eat chocolate. You haven't been sampling any chocolate cake again have you?! ;)


A pulmonary doctor in the ER told me to stay away from the chocolate because it makes the esophagus go all bazerk. Mine will quiet down in few hours. Sometimes chocolate is worth it.


Do you also have a fever?


I think you should definately see either general practitioner or rheumatologist. And yes, happens every time to me with new symptoms! Sometimes though, just making the appointment will make the symptom go away.


Love ya,

Take care,



Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post

Link to post
Share on other sites

Hi Barbs,


I may be wrong, I often am, and I have no medical training at all! But as I understand it, a lump in the throat is often caused by cricopharyngeal spasms (muscle spasms in the throat). They can occur in perfectly healthy people, and also frequently along with scleroderma esophagus involvement. It can take a few weeks or months for it to let up, once it starts in. It can come and go and usually it is made worse by stress.


Try calling your rheumatologist's office, ask to speak to the nurse, and ask her what you should do. That way you might be able to bypass a visit to your general practitioner. Or, call your ENT's office, if you have one.

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

Share this post

Link to post
Share on other sites

Hi Barbs,


I was hoping you wouldn't have to deal with even more than you already have...physically.


I also hope you have gone with the suggestions already given you, but I will let you know what I've got going on... which may or may not be what's happening with you.


I have a goiter/nodule... two, as a matter of fact. the one on the right side of my thyroid, has enlarged so much over the last six months, that it's putting pressure on my windpipe/esophagus. At the onset of its growth, I had to learn how not to choke... my throat would go into spasm,, so I work very hard not to become anxious, when this occurs.


I've had ultrasounds, as well as a fine needle aspiration on my thyroid, concluding it's benign. I'm happy about that, but it doesn't solve my problem.

An appointment is scheduled for me... with an endocronologist... but it isn't until the end of January. I'm sure this isn't felt to be an emergency, but I feel it is an annoyance. However, I have absolutely no idea how it's ultimately going to be dealt with.


I apologize for yammering on, but if this sounds like your symptoms... I just felt I should share my experience with you.


Keeping good thoughts for you, Barbs.

Big Hugs, Susie

Special Hugs,


Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post

Link to post
Share on other sites

Hi Barb, I had this feeling for a couple of months but it's gotten better lately. It was so bad at one point that I felt like I had to sleep with my head tilted back so I could get enough air through. I thought, "oh great, now my upper throat is closing up too". As it has gotten better I'm thinking now that it is something like Shelly mentioned. I do have an enlarged thyroid but my blood work has been fine. I also have had several episodes with my throat closing up after I eat something cold. Really frightening. Hope you find some relief soon.

Hugs, Piper

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now