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Denelle

Appetite

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Before they figured out that my SSc was affecting my small bowel (bacterial overgrowth) I lost 80 lbs. I was never hungry and could only eat a little bit and I would feel full. Once they put me on antibiotics I was able to eat normally and gained back about 50 lbs (which made my weight about right for me). I still don't feel hungry, but can eat an appropriate amount. If I over eat I can end up in the hospital with an NG tube. I'm also on prednisone and like many of you I crave sweets, like chocolate. :D

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Emmi,

I have lost weight, too, but my rheumatologist doesn't seem concerned about it. I also was already skinny! I have very little appetite, but I still do enjoy some food some times! Many days, I would love to just skip it all day long. Of course, I don't dare do that because I'll just lose more weight!

 

Mary in Texas

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I haven't felt hungry or had hunger pangs for a couple of years. I just ate by the clock.

 

This spring I started having problems with feeling full after a few bites and lost 25 pounds in 2 months. Had a gastric emptying scan done and it showed my stomach was emptying slower than it should (75% of test meal was still in stomach at test end while taking Reglan).

 

Now I eat by serving size. The joke at work is that I eat all day long - and I do - a spoonful of applesauce, a spoonful of cottage cheese, a spoonful of peanut butter :D. On days when I really can't eat anything I drink a hot instant breakfast drink.

 

I always said if only I didn't feel hungry I'd lose weight. Be careful what you wish for :rolleyes:

 

Ann


Ann R

 

If you sweat the small stuff you have wet, soggy small stuff.

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You know its quite amazing how prednisone affects the appetite. After pestering and pestering my rheumatologist, he's finally letting me lower my predisone 1 mg/month till I reach 5 mg, so immediately dropped from 10mg to 9mg. Wow my appetite is less than a third and very little in the morning. I still crave sweets but not as desperately.

Watch out cheecks, belly & butt you're goin' down!

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi, Ann. Welcome to the ISN Sclero Forums. It's so nice to have you join us. You seem to have a good sense of humor in spite of your illness. I look forward to reading more of your posts. Please let us know if there is anything you need help with.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I've lost 35 lbs since I was diagnosed in Feb. 2007. I lost my appetite right after I started to get sick and it hasn't come back yet. I think it's a combination of the meds and the disease. Good Luck !!

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My experience with appetite is similar to the prior posts as well. When I initially got sick I lost 30 lbs in the first year. I lost this weight on high dose steroids and low thyroid levels. My doctors keep an eye on my weight and I try to keep up my calories.

 

Now that I am feeling better I am enjoying food a lot more but I cannot seem to gain weight. I don't enjoy cooking because of my claw hands and I do much better when other people help me prepare meals.

 

Thanks for the reminder of how steroids can affect your moods. I am tapering off now and it is really hard.

 

Rosa


Rosa

Diffuse Sclero

dx Jan 2006

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Wow, it is amazing how we all suffer from this simple symptom and how drastic the affects can be. I hope we all take these tips to heart and use them.

 

Thanks for all the sharing,

Denelle in MN

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