Denelle

Funding Came Through

24 posts in this topic

Ramona,

The stem cell transplant will allow her to restart her immune system by essentially giving her a new one. The hospital will give her a medication that will cause her bone marrow to produce baby infant stem cells, which are cells that haven't decided what they're going to be. It's so fascinating - the whole body is made of stem cells. Then, they will remove her stem cells and clean them removing anything the doctors’ think contribute to scleroderma. Chemo and immunosuppressants are given to kill the "broken" immune system then the new cleaned stem cells are given.

 

Sibling vs. one's own stem cells? Well that's one the doctors are trying to figure out right now. A sibling transplant is more expensive and has a slight chance of rejection - for only 6 months. Also your siblings have a 1 in 4 chance of being a match.

 

It's a very interesting process. Hopefully this research will provide answers for us.

 

hope & health,

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi Peanut

 

Thank you for the update, I had no clue....it really is interesting and certainly sounds promising for research, etc. I wish you so much luck with this!!! Ramona


Sending good wishes your way!

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Ramona,
Peanut gave you a great explanation of stem cells.

Stem cells are "blank cells that do not yet have a specific function. Under proper conditions, stem cells begin to develop into specialized tissues and organs.

About Stem Cells and Stem Transplants ISN The Q&A article is very interesting.
It's all very interesting

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Congrats, where are you having this done, northwestern University? There was an article in a popular magazine about a woman who had the transplant -- she is doing fine today.

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Peanut

 

Thanks so much for telling us about the Stem Cell transplant. I knew nothing about it and your explaination was great!


Take care and stay warm,

 

Michelle

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Hi y'all,

 

I wish I had more news, but alas I am still waiting for final monetary negotiations to be completed. I always hope that it will happen the next day.... and I yet I am still waiting.

 

I hope once I hear that the negotiations are finalized that I will get appts right away. I just had a thyroid ablation and according to my MN doctors they won't do the transplant until my TSH is normal, so I hope that happens quickly.

 

Thanks for the good wishes, I will keep you updated.

 

Denelle in MN B)

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