• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
LisaBulman

Finger Ulcers...uugghh

15 posts in this topic

I have had two for the past three weeks and another one just popped up! I was on an antibiotic and on Monday I went to see my rhumie. He put me a med (can't remember the name, I have to pick it up today) but said to take 1/4 of a pill because it might drop by bp which is generally low anyway. If I can get the ulcers to heal by next visit, the first week in Feb, I'll be eligible to join a study. It is for a new nitro paste/rub that you put on before you go outside and/or in a cold environment. I hope these things geal!

Just had to vent!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Lisa,

Sorry to hear about your ulcers. With the temperatures you are having to deal with, it's not surprising. I'm sure staying warm enough to keep those blood vessels from shutting down has been a real challenge. Especially since you are ALWAYS out and about!

 

I'll keep my non-ulcerated fingers crossed for you that the meds heal your ulcers quickly.

 

This is probably the study you are referring to about the new nitro gel.

A Study of a Topical Form of Nitroglycerin and Placebo in the Treatment and Prevention of Raynaud's Phenomenon

 

The results from a preliminary study on this gel were reported at the ACR conference this year. This report was posted in the newsroom a few weeks ago. Apparently, the results were quite successful.

A Multi-Center Placebo-Controlled “In-Life†Study of MQX-503 in Patients with Raynaud Phenomenon

 

Stay warm and get those things healed!

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hey Lisa,

I'm sorry to hear about the ulcers. I have a few and they're so painful. I use nitro-bid cream, Norvasc and Revatio. I've also been using vitamin-e oil on my finger tips when the ulcers are just forming. It seems to delay the development...

 

take it easy and don't knock them on anything... that hurts SO much.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

be prepared for the nitro paste to give you headaches it did me... i had ulcers on my 2 big toes and one on my pointy finger and left thumb,,, i have since lost my left thumb but my other digits cleared up... i was told to soak in warm salt water twice daily and keep bandages on it.. abnd I did and they dried up and healed... so I hope you get the same results... the nitro past is supposed to increase blood flow to your digits... but dont put too much on it... the headaches hurt...

Share this post


Link to post
Share on other sites

Hi all! I'm working with fingertip ulcers right now :( as well. It's been off & on for a couple of months now and I've tried everything except the nitro cream (next on the list) I have had some success with cotton gloves and shortening - wearing at night. I'd done this years ago & it worked then after everything else failed and it seems to have really helped again so y'all (remember I'm from the south) might want to try it. Hope you do better!


Soft hugs your way,

 

Michele

Share this post


Link to post
Share on other sites

Lisa,

 

So sorry about the ulcers. You know I'm a big viagra fan. It saved my finger from amptutation. I used to take only 1/2 or 1/4 of a pill. I wonder if that is what they prescribed for you, or something similar. I also got horrible headaches from that. I think any vasso dilator is gonna do that.

 

I'll cross my fingers too. If they'll reach, that is! Ulcers arent' my problem, but they are so short that I can barely cross them! I'm stretching for you!


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

Share this post


Link to post
Share on other sites

Shortening? Stay away from breading and heat otherwise you'll have deep fried fingers.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Oh, peanut....what would we do without you to liven up our lives?!?!?

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Lisa:

 

Ask your doctor about Plavix. Just lost a toe to an ulcer, while another ulcer just developed on my ring finger. Since taking the Plavix, strange, ulcer on ring finger just froze and seems to be disappearing. Nail growth on that finger has a definite horizontal white line and now continues in a normal color and Raynauds has yet to hit that finger (that was basically the only finger it hit, and it hit hard!).


Tru

 

It is what it is...........

Share this post


Link to post
Share on other sites

Hi Janey,

Thanks for thinking of me! One has healed nicely but the other one just won't go away. I guess it doesn't help that I bang it all the time. It is hard to not use your fingers when you have two kids and life to deal with. :)

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Can you all tell me exactly how you use the nitro-bid? I did it according to directions, with the paper wrapped around it and all, but in the night I woke up, it felt like my finger was on fire! I had to rub it off fast. Maybe I left it on too long? Are you supposed to take it off after awhile? I don't have an ulcer---yet, but the finger is cracking and painful! And yeas, it's freezing here and I work outside the home. My darling hubby bought me a remote car starter which helps tremendously! I also use hand warmers and mittens, but even with the heat on 72, I'm still always cold indoors. Good luck to you all....spring IS coming, it's already lighter at 5 PM!

Peace,

Karen

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now