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barefut

3 Month Check Ups

3 posts in this topic

Saw rheumatologist and Pulm doctor Tuesday.

 

This month marks my 2 year diagnosis anniversary (Jan 2) rheumatologist says skin looks great. Softer than 2 years ago.

 

Pulm doctor suggested tapering the Cellcept even though my DLCO dropped 10% from 70% to 60%. He seems to think that's in my "stable" range. It's never been that low. Sorta scared me but I feel no different. Oh well. I guess I trust him.

 

Rheumy wanted to keep me at same Cellcept dose afraid that my mobility would suffer if we tapered. So we're going with rheumatologist's recomendation! Especially since Roche just sent me $4600 worth of medication for free on their patient assistance program!

 

Well, I am up WAY past my new bedtime but I miss you guys :(

 

I'm working on a blog - it's been swimming around in my head for weeks. Just need to reel it in. I know I've been slacking....

 

Has anyone heard from Barbs? I'm worried about her.

 

Love to you all,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi, Barefut. Glad to hear things are stable. Barb finally has a blog up, explaining her mysterious disappearance. I am so glad to see her again - now you have no excuse. :) I look forward to reading both blogs whenever they are posted.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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