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Joel

The Movie "For Hope"

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Has anyone seen this movie? The reviews say it was well done and gives an accurate portrayal of someone with Scleroderma.

 

Where can I view the movie or buy it?

 

Thanks

 

Joel

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Hi, Joel.

This is from our News Archive from July 2003 :

The movie "For Hope" depicts a rapidly fatal case of systemic scleroderma, and is loosely based on the story of Bob Saget's sister Gay, who died in 1994 from scleroderma. The movie features a cameo appearance of Sharon Monsky, who was founder of the Scleroderma Research Foundation and who has since passed away of scleroderma, also.

We do not have copies of this movie for sale or for distribution. However, the movie is usually aired on TV at least once per year in most major U.S. markets.


There is also a review of the movie on the page.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi, Everyone ,

 

People have asked me if I saw the movie and I haven't. Perhaps we can all keep an eye out for when it is being shown that 'once a year' so we can all see it. I am not a TV person so I would be the last one to find it!!!

 

Take care, Everyone.

Margaret

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I own the movie. My husband and I watched it together and I was a little taken aback. It's quite good, but the progression of the patient they are depicting was extremely fast. I think it was a bit much for me to watch. I had thought of showing it to my grown up kids before I had watched it, but after watching it decided against it.

 

If you want to know where to purchase it, you can send me a pm.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I have seen it. I rented it when I first was told that I have SD and it scared me half to death. I wouldn't recommend it. As has been said, it shows an extremely fast progression of the disease, and it's based on very old (now) treatments and prognosis. Thumbs down here.

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Hi I have also seen this movie it was on Hallmark channel I have shown it to a few people but decided against showing it to my sisters as it is quite scary Lynn

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Hi:

I have also seen the movie. It is very sad and I started to cry the moment she began complaining about her hands. I have tried to get this movie but nobody has it. I still want that movie, specially because I know now that there are more meds out there that could help people with this condition. Also we have to kep in mind that not everyone gets this scleroderma the way this woman did.

 

Ani

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<<As has been said, it shows an extremely fast progression of the disease, and it's based on very old (now) treatments and prognosis. >>

 

Danceswithcats ,

 

You are right about the movie and how outdated it would be in 2008 with all the new meds, etc. Just finding and treating each symptom these days prolongs the disease. I know when Gareth was first diagnosed, most of the reading material was depressing and outdated.

 

Take care, Everyone.

Margaret & Gareth

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Margaret & Gareth

 

Oh yeah. When I was first diagnosed, I was told I'd be dead in 8 years. That was 10 years ago and my doctors now tell me I'm gonna' be an old lady with grey hair long before the SD gets me! LOL

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