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peanut

Stem Cell Transplant Update

34 posts in this topic

Peanut, I'm tremendously excited for you! What a wonderful victory!!! We'll all be rooting for you as you go through the process, which can be daunting, to say the least. Here's hoping you will enjoy some delightful health improvements from it.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hey Peggy,
I'm very sick, but if you're interested and have the time it never hurts to inquire. If you are interested, look up the clinical trials page, or PM me and I'll give you my contacts.

I'm very excited but worn out and coming down with something. I think I have a fever. I hope its nothing serious...

ill peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Peanut,

 

Great news! I am very happy for you. Best of luck with everything. It is a long process but it is well worth it! If I can be of any assistance during the process don't hesitate to ask. Some of the greatest help I had during the process was speaking with those that went before me. I cannot tell you how happy I am for you.

 

Dave in FL

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Peanut,

I am absolutely THRILLED for you! With the determination you have for getting into the trial, you will definitely fly through the procedure. It's great to see Dave doing so well and you should use his experience as much as possible.

 

Peggy, Using the link that Peanut provide you can get directly to the home Page of these trials. In some cases you can email directly is you have a specific question. A couple of years ago I emailed the "contact" on the SCOTS Trial page to see if having a pagemaker disqualified me. I got an answer within 24 hours. So the point is, if you can't find the qualifying criteria on the website, then just email them directly. (BTW - the pacemaker DID disqualify me. Oh well)

 

Big Hugs to you Peanut. It's going to be quite interesting watching you go through this experience.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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:lol: YaHoo! Whopee! Yesssssss! Way to Go!!!!! Uh huh--Uh huh!!! Congratulations!

 

Peanut,

 

This is such fantastic news!!!! It's late but I decided to check in anyway. This is the first post I checked in on. I am soooooo glad I did. Enjoy your victory!

 

xoxo emmie

 

PS Did I mention how happy I am for you! :D

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Sorry to hear you are coming down with something, never good news in the best of circumstances. Please do rest a bit. I am VERY pleased you finally got some positive news on this and look forward to hearing more on the process as it unfolds.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Congrats Peanut! I am so happy to hear the news. You're a breath of fresh air for so many of us. It's wonderful that things have turned around for you.


Take care and stay warm,

 

Michelle

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