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Snowbird

Limited Crest

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Hi

 

I have a question about how the swelling happens....does it happen gradually so that it kinda sneaks up on us slowly or do we just puff up like balloons all of a sudden? :unsure: ....ok, maybe a couple of questions ;) ....and does it happen everywhere on our bodies or just our face and hands? Thanks.


Sending good wishes your way!

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Hi,

 

I have CREST, and I'm not sure what "swelling" you are talking about. My fingers did get puffy enough that I had to size up my rings. I have found that if I take too many anti inflammatory, I'll puff up even more. But for me, the puffiness is not noticeable to anyone but me.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Snowbird,

I have CREST and I also get swelling in my joints and I don't know what triggers it. One day I'll be doing good, then I wake up the next day practically unabble to walk or to open cans or open the door or turn a key in the car ignition.

My doctor has me on Prednisone for the swelling and on Celebrex for the pain. I also take a supplement, Omega 3, which is fish oil. I believe it has really helped me with swelling and inflamation.

I have CREST.

 

Mary in Texas

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Thanks Sweet & Bookworm...appreciate your help....I have SS Limited CREST too.

 

Yes, I did mean the puffiness in our hands/faces...and I was trying to figure out if our faces get puffy too?

 

Do your fingers stay puffy all the time or just for awhile in the morning until you're up and about a bit?

 

Bookworm, it's interesting that the fish oils help....I have heard that they are good for many things lately...I don't normally take them except in the winter...maybe I should think about taking them year round.


Sending good wishes your way!

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Snowbird, I often wonder about this. My hands are puffy when I first get up in the morning & then seem to ease a bit only to come back in the evening & through the night.

My consultant ignored me when I mentioned this to him & said it was nothing!

 

But needed to do a lot of cleaning yesterday(rubber gloves on) & my hands have been dreadful since - very puffy & rings very tight, they are also stiff is this what others experience?

 

Jen

 

Limited SSc

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HI Jensue, your description of what happens with your hands sounds familiar. the 'puffiness' of mine varies during the day and also day to day. some days feel very stiff and puffy and other normal. RE the reheumatologist saying that it is nothing: I have come to the conclusion that the dr is often actually trying to be reassuring and that they don't realise that it can come across as being dismissive. I know that mine sometimes doesn't seem to take on board what I have said about symptoms but know from the blood tests/investigations that are then ordered and letters that they have sent the general practitioner that they have. It would be interesting to see what our doctors wrote in our notes - It might change our perceptions (or there again, might confirm them!)

 

Lizzie

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Hi Lizzie

 

My rheumatologist consultant hasn't really told me anything, & it's the general practitioner who is more supportive.

Due to my present situation at work my union have asked if I can get copies of letters from consultant to general practitioner to see whether or not he would support IHR. OH doctor will I think & so will general practitioner but it's the consultant that's the issue.

 

I'm fed up of all the weird symptoms & getting no answers or help, that is why work are being like they are because OH doctor can't say if there will be an improvement & I know either.

 

Swelling has gone down a bit now but hands still feel stiff & painful. So I guess I just have to put up with it!

 

Jensue

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