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Changing Hands........

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I'm wondering if it's possible for someone with Scleroderma, to have the puffy/swollen fingers and then within one day they are gone and the fingers look completely normal.

 

This has happened to me today, for the first time in months, my fingers are straight, not sore and the swelling is gone. Actually they look like old hands because of all the wrinkles, which I am not used to seeing :blink:

 

While I am thrilled to have "normal" fingers again, it worries me that they will stay this way when I see the rhuematologist for the first time on the 28th Feb. Am I crazy for wanting my hands/fingers to look the way they did before so he can view them at their worst ? The way I look now no-one would believe how bad they were.

 

Also strange because I have just finished some anti-inflamatories which I think didn't make a difference. Now that im off them the swelling goes ! How normal is this, is this common ?

 

Thanks in advance:)

 

Karen

 

Undiagnosed ATM

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Hi Karen,

I don't think that happened to me but if it did it would have been about 15 years ago. As fo wanting them to look bad when you go the dr, no you are not crazy. I believe if you are sick and you know that you are sick, you want the dr to be able to see it and validate the way you have been feeling by diagnosing you properly. Enjoy your hands while you can, you never know when they might change again!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Karen this happens to me al the time we call them sausage fingers here one minute gone the next very strange they get very stiff also some times my hands are wrinkled then they look normal hope this helps Lynn

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Hi Karen

 

I don't think you're crazy either...I'm doing the same thing with my spots since I'm also new to this....so at least we're in this together if we are ;) !

 

Just a thought...any chance of getting yourself a picture next time if it happens again...then, at least you would have something to show the doctor?


Sending good wishes your way!

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Hi Karen, You're talking about my fingers and I don't have a diagnosis either, only grumbling disease. Makes me think I'm imagining it sometimes. Taking a picture of them is a good idea.

Hugs, Piper

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Hi Karen,

I agree with Snowbird - try to take some pictures. It will show the doctor what has been happening and can also serve as a good baseline to watch for changes happening over time.

 

Hi Snowbird - by spots do you mean the tangelectasia (spelling?) I don't have too many spots but a whole lot of little veins showing up on my face.

 

Take care.

Sue

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