Jump to content
Sclero Forums

Recommended Posts

Hello everyone. I was diagnosed with Systemic Scleroderma in 1997. I have had problems with my heart, lungs and kidneys in 1998. I am having painful leg cramps now and have to use a cane. My fingers are curled under.

SuzetteSnow

Share this post


Link to post
Share on other sites

Hello Suzette. So glad you have finally found this forum after so many years of dealing with the disease. Let me welcome you with a big hug. Please feel free to read all the topics and comment on the ones that interest you. I look forward to hearing more from you.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Suzette, and welcome to Sclero Forums! I'm sorry you've been so severely affected by scleroderma. How have you managed to keep your attitude so sturdy over all these years?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi SuzetteSnow

 

Sorry to hear you are having such an awful time. Like Emmi, I enjoy my visits here a lot too...it's a great place to ask questions.....everybody is so helpful and can help us learn a lot about this disease.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi Suzette!

 

I am new here also. The people are great. Everyone is very supportive, knowledgeable, and of course understanding :D

 

The chat sessions are great too!!!!!

 

Warm wishes

Mel

Share this post


Link to post
Share on other sites

Hi Suzette,

 

I am new here too. There are so many people who are so knowledgeable and helpful. When I first found out what I had, I was really scared and had never heard of sclero before. Everybody is so supportive of each other, and so warm and friendly. I guess if we have to have a disease, at least we have one where you can meet so many wonderful people. So welcome. You have found a warm, supportive place to be.

 

Big hugs,

 

Cheri

Share this post


Link to post
Share on other sites

Hi Suzette,

 

I justed to join in and say Welcome too. My fingers are curled under as well. I have really had to learn patience and creative ways to accommodate.

 

Rosalinda


Rosa

Diffuse Sclero

dx Jan 2006

Share this post


Link to post
Share on other sites

welcome

i was dignosed two years this july, im sorry to hear that u are so bad but there are lots of gd people here with gd advice ....i ofen feel so lonely in my life but finding this site has made me relise I am not alone

very warm hugs from jaxsx


live life for today and not for tomorrow

 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×