barefut

Sclero Symptom?

4 posts in this topic

My calves have been hurting - like they are falling asleep. It starts out like a deep ache then turns into a tingling and stinging. They only hurt when I'm sitting down or laying down (at rest) They kept me from falling asleep lastninght.

 

I mentioned this to both my general practitioner and rheumatologist about 6 months ago and neither of them had much to say about it other than its probably not blood clots. It has definately gotten worse in the last 6 months.

 

I've also noticed a milder version of the same thing starting in my forearms.

 

Can anybody shed some light for me as to what this COULD be? I'm kinda worried.

 

I'm snowed in today and don't know for how long, so don't know when I could get to doctor.

 

Thanks

 

Oh yea, another symptom - I feel 'paper cuts' on the backs of my hands and my forearms......weird.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hey Barefut!

 

I'm really sorry you have been having this problem. It sounds a bit frustrating. I have had similar what I call neurological problems and they can be hard to diagnose it appears.

 

For me, and of course I am not a doctor, so I will just share with you what my situation is - I had a pinched nerve which was helped my having spinal manipulations. That helped my lower legs. I also had/have numbness and pain in my arms and hands that feel like the "paper cuts" you are describing. This ended up being "Thoracic Outlet Syndrome" and I'm undergoing physical therapy for this and it's helped release some of the muscles in my upper body which is constricting the nerves leading to my upper extremities.

 

It might be helpful to mention this to you doctors.

 

I found a page on the ISN site that may be of help as well.

 

http://www.sclero.org/scleroderma/symptoms/ske...ml#neurological

 

Hoping you get relief soon!!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Barefut,

 

One of the first symptoms I experienced was pain in the calves. They became extremely tight, like the calves you might expect to see on an athlete, of which I am definitely not. They also burned when I stood still for an extended period of time. I think the pain I experienced is a combination of muscle pain and pain caused by skin tightening in the area. It was a major symptom for me early on and remains that way to this day. I wish you the best of luck in getting some relief for this.

 

Dave

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Hi Barefut,

 

I have had these in the past, sometimes for no explanation, sometimes due to standing on my feet too much. Sometimes just an OTC pain reliefer would help or putting heat on the legs. I hope they get better. Susie54

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